I've also posted this on the UC forum
There I was thinking things were improving, we were on holiday in Paris, the entire duration of the trip felt like I needed to go to the toilet, and had a couple of close calls.
So Wednesday we were wandering around the Louvre, I had that persistent nag in my tummy, but that had been there all week, then it happened I had a huge accident, with 60 seconds warning and unable to find a toilet. I was mortified, my other half was fantastic, but why is this happening? He'd had an upset stomach during the week too, I think it may be because of the mineral water as I had not altered my diet at all during the trip.
Why can I not hold on? Does this mean there is still inflammation? I had 2 accidents in April when my symptoms were at their worst, before my treatment started.
I don't know what else I can do, my diet is as bland as it can be. Any suggestions.
I've cried for almost 2 days straight and I am so lucky that my other half is wonderful, but I feel that I've taken a huge jump backwards. I don't want to go outside.
30 year old, female.
Finally diagnosed with severe ulcerative proctitis, Mar 2009. (Doc unsure if it's Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp at night, Probiotics, zinc supplements, Cod liver oil.
Past meds: prednisolone, colifoam ememas.