My GI is not convinced, but *I* am convinced that my recurring issues with pilonidal cysts is connected to my Crohn's disease.
First of all, I had these cysts before my diagnosis - had surgery to remove them, the worst experience of my life, never healed from the surgery and THAT is what got the Crohns diagnosis. Within 2 weeks of my first Remicade infusion, the wound healed.
Three years ago, I flared big time and a pilonidal cyst returned. Was hospitalized for my flare and the mixture of steroids and antibiotics healed the cyst.
A few months ago, I started to flare again. I knew it was coming as - you guessed it - darn cyst returned. 21 day course of Levaquin healed it up. I just started on Cimzia two weeks ago and the darn cyst is back again. The use of the antibiotics is troubling to me but functioning with the cyst is nearly impossible. Plus it's painful.
*I* think they are connected somehow, as the cyst comes as soon as I flare and tends to heal when my Crohns heals. Has anyone else ever had a pilonidal cyst or heard of any connection between the two? Or might it have something to do with my immune system freaking out during a flare and the cyst coming back? It really just adds insult to injury now to deal with two issues.