So it has been about 6 months since i lasted worked a full day. I had surgery on March 6 2009 and my surgeon clipped my colon and I had to have another surgery to remove about 12 inches of intestine and small part of colon two days later and had to have a ostomey bag placed on me (still have it) I have experienced about every problem that you can have, i was in the hospital again for a week for kidney failure due to the meds that the doctors put me on, I have four fistulas that formed along my scar line and caused immense pain, then last month I got pnmoneuna (sp?)
and was back in the hospital.
SO anyway... I am finally back at work getting a paycheck, it is hard to pay rent with no paycheck for 6 months. My pain seems to be returning, but not fistula pain i belive it is crohns pain again. After going through all of this just to feel the pain that i had surgery to get rid of is making me scared about what is to come. I have a 15 month old daughter and already have missed huge moments in her life due to me being in the hospital, it really tears me up that i cannot be the father/husband i want to be for her and my wife.
Sorry just needed to vent....Thanks to this site for allowing people like me to tell what we are going through and feel not alone in my journey with crohns.
Have a doctors appt. tomorrow hope I get some good news.
Crohn's since June 2005
Relapse/flare up since Oct. 2007
Been on Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
Humira for 1 month from July 2008-Aug 2008 then contracted histoplasmosis and was in hospital for 11 days in Aug. 2008
Surgery on March 6th 2009
Surgeon clipped my colon during surgery, in hospital for 14 days. Fistulas formed with immense pain along scar line. Have ostomey bag for now until I get well enough to reverse the bag. (cannot come soon enough!!! I HATE THE BAG!!!)
Out of work from March 6 2009- Sept. 1 2009.