May have crohns diease

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New Member

Date Joined Sep 2009
Total Posts : 4
   Posted 9/13/2009 4:14 PM (GMT -7)   
 I am new to the forum and I hope I can talk with people to help me understand my illness and hear others experiences. I also would like to be of help if I can. I'm waiting for the test results but my GI doctor seems to think I have Crohns disease, I never knew anything about it and still I  know very little.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 9/13/2009 4:53 PM (GMT -7)   
Ask away if you please! It might help to know your symptoms as well...
In any case, I hope all works out well for you. Feel free to vent, offer/ask for advice, and so forth.
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

New Member

Date Joined Sep 2009
Total Posts : 4
   Posted 9/13/2009 5:49 PM (GMT -7)   
 Thank you for your comment and your well wishes to me.
Good luck to us both in feeling better!!

New Member

Date Joined Sep 2009
Total Posts : 1
   Posted 9/13/2009 5:58 PM (GMT -7)   
eyes  I have just recently been diagnosed due to a blocked bowel and three weeks of hospitalization which included a couple of blood clots.  I am now awaiting a colonoscopy and gastroscopy for further information on the diseased sections of the ileum.  I am hoping for the best.  I am sure that I have had CD for many years but was told it was IBS and to take imodium for the diarhea.  I have also had a number of auto-immune issues throughout the past 15 years including eye issues, Raynauds and arthritis.  I went into early menopause (Premature Ovulation Failure) at 37.  I have gallbladder issues since 18 and had to have it removed in my early 30's.
I am currenty taking 5 Prednisone tablets a day (starting at 8 per day and each week it decreases by one).  I am at the mid way point of the steroids next week and will be seeing my Gastroenterologist and will continue the steroids for another month.  I am also taking 2 Pentasa 4 times a day, Prevacid, iron 3 times daily , B12 shot weekly and of course coumadin due to the blood clots.  I am also taking sleeping pills as the steroids are keeping me awake and the sleeping pills are not even able to help that much.
That is my story thus far! smurf

New Member

Date Joined Sep 2009
Total Posts : 4
   Posted 9/13/2009 8:11 PM (GMT -7)   
 Thank you for telling me your story, I have been having problems with my illness since earlier this year. Good luck to you.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/14/2009 6:30 AM (GMT -7)   
Just wanted to welcome you both to Healingwell. As you can see we have many wonderful and supportive folks trying to live with this stinkin disease too.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined Sep 2009
Total Posts : 11
   Posted 9/14/2009 7:08 AM (GMT -7)   
I hope your testing comes back ok. Wish you luck.
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