Crohn's and eating disorders

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Regular Member

Date Joined Aug 2009
Total Posts : 377
   Posted 9/14/2009 6:39 PM (GMT -7)   
This is seriously embarrassing, but I need help or encouragement. Does or has anyone else dealt with eating disorders? I have never been strictly anorexic, never threw up, but I have gone the extremes from restriction to binging. A lot of the time, I think the binges were in response to the restriction.

Well, I have read so much about nutrition with Crohn's and how sugar is pretty much the worst thing you can eat if you have Crohn's, and here I am stuck in this battle of restricting sugar and then binging on sugar. I really want to follow the Maker's Diet, but I feel like the more I try and diet, the worse my binging gets. I feel so ashamed at how I can treat my body like this after I have been diagnosed and have seen what damage it can cause to my body.

Does anyone have experience with this? Any encouragement or suggestions would be greatly appreciated. I don't want to keep ruining my body.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 9/14/2009 7:30 PM (GMT -7)   
Oh sweetie there are people (counselors/therapists) who specialize in the area of eatting disorders, and man have you got a double wammie adding CD into the mix. I think professional help definately might be something to think about (it might take you a couple of different ones to find one you like), just simply because eatting is really difficult sometimes let alone when you have other issues going on. Be very gentle with yourself please.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 9/14/2009 8:04 PM (GMT -7)   
I can't really speak to eating disorders per se, but I do tend to stick the same foods over and over and restrict my foods to those that I know won't make me sick. I know that isn't the best. Eventually I don't want to eat at all because it all becomes boring and then I just want to eat food that is bad for me, but usually its just a bite, to get the taste of it. For me its the boredom of same old, same old, so why bother eating.

As far as sugar being the devil, I'm not sure I buy that, or at least not for all of us. When I am at my worst, the foods that I CAN tolerate the best are usually the high sugar, high carb foods. Things like puddings and custards, white rice, potato, ices, Popsicles. Could I live on these forever, no. But I have lived on them for several months while waiting for surgery, and for weeks, while waiting for blockages to clear.

The one thing I know for certain with CD is that we all are affected individually. That is what makes treating it so hard. What works for one, may not work for any one else, or it may work for a lot of us, but not work for you. YOU need to find what works for you in your diet. If the Makers Diet works for you, but with adjustments, do it your way and call it something else. That way you won't confuse all the MD people who are religious about it. Call it the Octobergirl Diet. I call my diet my White Food Diet, because, just about everything on it is white. Easy to explain, easy to follow.

I just know that if I am going to have to live on pudding and custards for any length of time, I am going to make sure that they are the BEST pudding and custards possible. I make them from my at home with my lactaid milk, sometimes from a box, sometimes from scratch, but adding extra protein and whatever else I can to make it as nutritionally sound as possible.

I do suggest trying to get your hands on a copy of a book called "Cooking Well for the Unwell", by Eileen Behan RD. She goes through all the various reasons a doctor might want to limit your diet and how to go about it. She explains the reasoning, so you can apply it to other recepie not just hers. Each section has recepies to help get you start and then you can take it form there. I have 2 copies that i got from amazon as used books. I paid about $4 for each copy used. That way I always have a copy when I want it because I was always loaning it out to freind. It has chapter on needing more calories, less callories, low salt, more liquid, less liquid, more protein, making every bite count

If anyone is interested You can order it from Amazon

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/15/2009 6:20 AM (GMT -7)   
I eat much in the same manner as Zanne. Always the same thing day in and day out. I too don't do bad on sugar, and when feeling bad, those help me too. I am going to have to check that book out, sounds like something that might be very useful.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 9/15/2009 8:21 AM (GMT -7)   
yes...i am sure there are people out there..but i don't think it has anything to do with Crohn's...i was anorexic for a long time...i went from 155 to 117 pounds...on my own..and i ate only like 500 calories or less per day and like only 2 grams of fat..for me cutting out the fat..thats what made me lose alot of weight...i used to walk like 4 miles a day...and exercise for like two more hours..i used to hide in the bathroom to eat and throw away food..its all about control...i had my parents to help me and they put me through counseling..its always going to be a struggle..but hopefully one day you too can break free..and eat without guilt..good luck


Regular Member

Date Joined Jul 2009
Total Posts : 342
   Posted 9/15/2009 8:23 AM (GMT -7)   
You will really mess yourself up...i lost my period for a year..had to take hormone grew on my face...and after that...all my bowel problems and my Lupus like symptoms kicked in...who knows..maybe i caused my own health problems...but i sure wish i could go back in time and never EVER allow myself to become anorexic...


Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 9/15/2009 9:37 AM (GMT -7)   
I used to eat one pack of fruit snacks a day during high school. I was obsessed with being thin...I was never formally diagnosed with anorexia because no one bothered to take me in. It was always 'why are you so thin? eat more later okay?' And that was it.
I would have periods of binging on sugar too though. Oat meal cream pies, frosted flakes, lindt truffles, snickers bars, anything with peanut butter etc.
It was a really difficult cycle to break, and I still have some trouble with it now though not nearly like before.

What I've found really helps is not to swear off sugar completely all at once. Just take a few things out of your diet gradually. It also takes a lot of will power, and you obviously slip (we're only human right?), but practice and moderation are key.
You can do it!!!
20 years old, Diagnosed with moderate to severe Crohn's and Colitis in May of 2008.
Currently taking: Prednisone 5 mg, pentasa 2 pills 4x a day, omeprazole in the morning, and a women's multivitamin. I'm also trying a B vitamin complex, but it doesn't seem to be working so I'm considering the shots.
Diet almost completely without refined sugars, wheat, flour, gluten, high lactose dairy, and/or junk food in general.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

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