Had my GI appointment yesterday. I am at exactly the point I was 3 months ago.
Back on anti biotics as I have another abcess making it's bid for freedom (seeing the surgeon next week) and another patch of external ulceration (apparently not uncommon??). No doubt another seton will be needed.
Back on pred because of the setback I had 2 weeks ago on holiday, (taken unwell in the Louvre museum, and feeling generally unwell all week), resulting in cutting the hoiliday short and paying a fortune to come home early.
Barium follow through has been scheduled, they have finally decided that they need to completely rule out Crohns as I do not fit a UC picture. Unfortunately I only had a flexi-sig initially, so I guess I have the joys of a colonoscopy coming too.
My bottoms sore, my tummy is rumbling and all I want to do is eat all of the things on my not allowed list
But I wont, I have one more more chance to stay well after the pred or they'll start pushing the azathioprine, and I certainly do not want that.
Hoping everyone is well. BIG HUGS.
30 year old, female.
Diagnosed with severe ulcerative proctitis, Mar 2009. (awating further tests to rule out Crohn's).
?2 fistulas, seton fistulotomy july 2009, 2nd fistula ?currently dormant.
Currently taking, 1200mg asacol TDS, 1g Pentasa supp, Probiotics, zinc supplement.
Prenisolone restarted 8th sept, for urgency, tapering dose.
Low residue diet, under the supervision of a dietician.
Past meds: prednisolone, colifoam ememas.