Hi Crazy Harry,
I've read your posts with interest. For the sake of avoiding argument, my daughter is currently on meds. My dream would be to get her off them. Do I believe it's possible to treat Crohn's naturally through diet and supplements and avoid meds altogether? Heck, I don't know. But I sure would like to research, learn, turn over every stone before I decided that filling my daughter's body with pills for the rest of her life is the answer. I understand both sides of the coin. I value all opinions and experiences. I sort thru that and my daughter's condition, heed medical advise, and try to make an educated decision that is in her best interest.
That stated, I am interested in the SCD and/or Maker's Diet. Her Doc did mention this to us as a possibility when she was first diagnosed last spring. I am VERY familiar with this diet as I have known people on it and have a child with autism as well. I have Elaine Gottshall's book. I poo poo'ed it (no pun intended, ha ha) because my daughter is only 9 years old and I figured this would break her heart and be waaaaaaay too difficult for her to follow. I STILL feel that way, BUT I am still considering it as a possibility because her Crohn's is flaring up again after only finishing her prednisone in June. (I was hoping for a much longer remission period for her than just 10 weeks...aren't we all?) It's a very very very hard decision for me to make; to commit to learning, understanding, cooking for this diet; but mostly to commit to being the ultimate bad guy and telling my daughter that ALL of her favorite foods are gone and that she now has to live on foods she hates. I haven't been able to get past all of that just yet.
What I DID do is buy a yogourmet yogurt maker in the hopes that flooding her body with beneficial bacteria might help her in some way. (I have read on other sites that while probiotics are not a "treatment" for Crohn's, they may help to maintain remission once you are there.) My first batch is brewing as I write. My daughter is an EXTREMELY particular eater. I'm praying she will even tolerate a mouthful of my yogurt. I'm not even sure yet, how I'm going to make it palatable for her. Surely she will want me to add SUGAR
and fruit. To date, she does not like the taste of honey...repels from it actually. I used whole milk and half&half in equal parts. Perhaps I should have used goat's milk, but I read that it is much more bitter tasting and Lord knows I don't want her first taste of this stuff to be bitter or it's ALL OVER right out of the gate. Anyway, this is my first tiny foray into the SCD world.
I'm assuming if I do venture into the real SCD, then I would need to start from step one, induction, chicken soup. Here's my fear: my daughter HATES chicken soup. She will not eat it. She would lose lots of weight and she's already only 70 lb. Another issue...what about school lunches? There is no microwave available to kids at school. She packs daily, her lunch is cold. She will NOT eat cold chicken, etc. from SCD. What the heck would I send in a lunchbox???? The whole idea of doing this diet for her intimidates the heck outta me.
I keep thinking (and my husband agrees) that after she's fully realized how much Crohn's will affect her life and she has matured a few years, maybe just maybe she will be willing to do something as drastic as this SCD. Maybe just maybe she will WANT to do it...to restore herself to health. Or maybe that's me procrastinating and being a lousy parent when I should in fact take control and "make" her go on this diet.
Any input Crazy Harry (or anyone else who has been thru this)? Any advice for convincing a child that they have to learn how to eat differently and that food is no longer a source of pleasure for them but rather an evil necessity? Anything at all?
Posts refer to my 9 year old girl
- Started with 30 mg Prednisone, tapered off over 3 months
Then continued with:
- Pentasa, 3 blue horse-sized capsules, 3 x daily
- Forvia multivitamin/mineral for Crohnies
- VSL#3, 2 x day
- Custom Probiotics: 6-Strain Blend, 1 x day
- Culturelle, 1 x day