Surgery for the First Time

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Ann F
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Date Joined Jul 2004
Total Posts : 73
   Posted 9/25/2009 6:20 PM (GMT -7)   
I recently met with a surgeon on the advice of my specialist and I will be have an ileocecal resection done by open surgery in the next couple weeks. I was wondering if anyone can provide me with any information/advice about this surgery and what I can expect. I was diagnosed in 2004 and have not been in remission since. I have taken Remicade, which worked great for about 2 years but I had to stop taking due to the side effects. I am currently taking Humira once a week, Imuran, Entocort, Naprosyn and Nexium and still feel like crap most of the time. Any advice you can offer would be greatly appreciated.

Regular Member

Date Joined Nov 2008
Total Posts : 348
   Posted 9/25/2009 6:48 PM (GMT -7)   
Where is your Crohn's and what part do they want to take out?
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Zosyn IV 4.5g x 3, Flucanozole 200mg, Asacol 4 x 3

Ann F
Regular Member

Date Joined Jul 2004
Total Posts : 73
   Posted 9/26/2009 5:48 AM (GMT -7)   
My Crohn's is in the terminal ileum - so part of the ileum and then part of the large intestine I guess

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 9/26/2009 6:29 AM (GMT -7)   
I have had 3 resections at the joint of the small and large intestines, so basically the same area. Overall I have had about 4 feet taken out, not sure how much of each though. As far as the surgery goes, my last one was about 12 years ago and things may be a bit different. Things had changed from my first to my last and that was only a matter of 5 years or so. But basically after you are put out, you will get a N/G tube, this may be taken out before you wake up, but don't be surprised if it is still in when you wake up. Also you will get a catheter, that probably will stay in for a day or so. You should ask your doctor about how your pain will be treated. I had a patient controlled pain pump, so that I was getting a consistent dose of med but I could give myself a boost if I needed it. Some people here have had epidural pain meds. You don't want to let the pain get out of control because then it is much harder and takes more medicine to get it back to a reasonable level. The catheter and N/G tube(if you have one) will come out in a day or so.

At some point, the nurses will want you to get up and walk. This is when you want to give your self a boost of pain med because walking is the best thing to get your bowels moving again and you can't go home until they do. So walk as much as you feel you can. Small amounts at a time, working your way up to longer amounts. It also helps to have a small pillow to hold over your incision when you move or cough. Some nurses are really good about helping you get yourself comfy, others not so much. If you are a side sleeper and you can get a nurse to wedge a pillow behind your back it helps to easy your tummy muscles because you can lean back and rest that way.

Personally I always bring my own pillow (have someone bring it to you after the surgery) and a few pretty/bright pillow cases. Its just nice to have the smell of home and something cheery. Bring all the usual distractions, books, mags, mp3, cards. You won't feel much like doing anything for a day or so, but things will improve gradually and when you look back on it in a few months you will much happier because you will feel better. The one thing I think is truly important and has kept me of the operating table for the last 12 years is maintenance medication.

Best of luck and as you think of specific questions just post them.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jul 2006
Total Posts : 95
   Posted 9/26/2009 7:43 PM (GMT -7)   
I'm suppose to be having the surgery on Monday. It will also be open. So I can tell you more next week.
Solanges: )

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 9/26/2009 9:01 PM (GMT -7)   
I brought my Spiderman blanket. Soft and smelled like home!
34 years old, Crohn's disease for 15 of them
Current Meds: Humira since 7/08, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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