Crohns disease and Thyroid issues

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Regular Member

Date Joined Jul 2005
Total Posts : 91
   Posted 10/12/2009 9:52 AM (GMT -7)   
I am a longtime Crohns patient, with 2 resections, etc.. on Humira for 2 years
Over the past 6 weeks, I have had severe pain on the right side of my neck, and have been short of breath with heart palpitations
last week, through blood tests and an ultrasound, my doctor diagnosed me as Hyperthyroid with a nodule on the right side of my thyroid
The nodule will be biopsied in a few weeks, and I am trying to get an appointment with an Endocrinologist ASAP,
When I let my gastroentorologist know, he said he was not suprised as Crohns and Hyperthyroidism are both Autoimmune disorders and you often see one with the other.
Does anybody have experience with this
The Hyperthyroidism has wiped me out - I am exhausted, Nervous, have heart palpitations, get short of breath doing fairly trivial tasks etc

Regular Member

Date Joined Feb 2003
Total Posts : 101
   Posted 10/12/2009 11:08 AM (GMT -7)   
 Hello....I too have thyroid issues but I have Hypothyroidism...Underactive...I was DX'ed after my long take of Prednisone but I take Levoxyl everyday. I used to see a Endo but since my levels have been even for years I have my GP now take the test and prscrib the meds... Hope u feel better soon!
Dx w/ Crohn's Disease May 2000
Asacol 400MG
Small Bowel Resection November 2008

Dx w/ Hypothyroid 2001
Medication: Levoxyl 88MCG

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 10/12/2009 12:18 PM (GMT -7)   

I started out with hyperthyroidism (what they were saying was Grave's disease), then it went low and kept getting lower.  So, now I have Hashimoto's thyroiditis.  Yes, this is also autoimmune and both of my parents have thyroid disease (and now my sister does as well).  I take Synthroid daily and just go once a year now for labs.  From what I've read, if you have hyper, your thyroid can eventually burn itself out and then you are hypo for the rest of your life.

My endo did tell me that switching Crohn's medications can cause your thyroid levels to get out of whack, so she suggested I come see her if I've switched meds and aren't feeling right after that.  I haven't had any problems getting my thyroid levels off by switching meds yet, though.   

I had a nodule biopsied back in December, I think.  I've got to say it was one of the scariest feeling tests I've ever had.  Didn't hurt and wasn't a bad test, was just a very scary feeling with the needle in your neck.  I'm sure it was only a few millimeters in, but it felt as if it was all the way through my neck and they had me pinned to the table with the needle.  =)  But, it was over relatively quickly (stuck me maybe 4 times) and she said I did very well.  I told my sister that it wasn't bad at all, because she was thinking about backing out, she was so scared.  She only made it through one stick and then told them, "no more!" 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 10/12/2009 1:54 PM (GMT -7)   
I had hypothyroidism that turned to cancer and once I had that out I was good for yrs. before I got serious Crohn's. I take synthroid and get it checked regularly. I remember being scared about having cancer there but I got told it was the best place to have it because they just take it off and you're fine. Yup,that's the way it was. OK the crohn's is another story.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

New Member

Date Joined Feb 2003
Total Posts : 7
   Posted 10/12/2009 9:47 PM (GMT -7)   
I have crohn's disease and had thyroid cancer 4 years ago.

Regular Member

Date Joined Jul 2005
Total Posts : 91
   Posted 10/13/2009 7:03 PM (GMT -7)   
Thanks for all the responses
Always good to know that we are not alone in this
Take care

Regular Member

Date Joined Nov 2008
Total Posts : 348
   Posted 10/13/2009 7:23 PM (GMT -7)   
My mom and grandma both had thyroids. I learned that it is an autoimmune disease when I was in the hospital recently.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 10/14/2009 6:01 AM (GMT -7)   
My older half sister had a goiter in her mid to late 30s and they just did the radiated iodine bit for her. My mother had to be on thyroid medication after the discover of and surgery for a benign meningioma on the pituitary but she was in her late 60s by that time.

I just recently developed some mild symptoms, went in to my family doctor for a flu shot and instead of the flu shot I got shipped off to the imaging facility for thyroid blood work and a soft tissue CT scan of the neck. Symptoms were to the left and center of the throad but the CTE says theer are some irregularly hypoenhancing nodules in the mid and lower pole of the right lobe which is somewhat elongated and mildly enlarged. Go figure.

I have a followup on the CTE and blood work this afternoon, but I've already e-mailed the results to my Endo who has been treating me for osteoporosis.
I'm also a long time Crohn's patient. Symptoms began mid-1975, Dx'd early 1976, emergency resection early 1978, 20 year remission, blessed w/mild activity on and off since then, most of the time in remission or symptomatic remission. Pentasa and Imuran as my Crohn's meds w/occasional antibiotic treatment for small bowel bacterial overgrowth and only one short round of Entocort EC. God looks after fools and I have been blessed many times over.

Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

Post Edited (CrohnieToo) : 10/14/2009 7:06:27 AM (GMT-6)

Regular Member

Date Joined Aug 2007
Total Posts : 55
   Posted 12/9/2009 3:01 PM (GMT -7)   
I have Crohn's and thyroid problems as well. Went to Memorial Sloan-Kettering where they found nodules, one is very large and visible at the base of my neck. Had a sonogram and a biopsy.  The result was a benign condition, called multiple goiter. (There is no family history of such condition) Have to go back in six months for another sonogram.  I wonder if there is a connection between the two condition, or can we blame the medication !

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 12/9/2009 11:15 PM (GMT -7)   
check our thyriod forum

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 12/10/2009 10:18 AM (GMT -7)   
The FNA biopsy was a piece of cake. My biggest concern was that they inject lidocaine locally before starting the FNA (fine needle aspiration).

I have a sensitivity to novacain, probably the epinephrine in the novacain or the combination of the two which is why I was so concerned about the lidocaine but they wouldn't agree to just a topical anesthetic.

We compromised. They injected a minute amount of lidocaine and waited 5-10 minutes to watch for a reaction. I had none so then they injected the rest of the dose. There was just a very mild, minor sting w/the first injection, over before it really registered that I had received it. They took 5 aspirations and I never felt more than if someone were pressing very lightly on my neck.

I was very surprised that the surgeon doesn't do the FNA biopsies. The radiologist does them guided by ultrasound. I had the US tech, the radiologist, a pathologist standing by, a radiology nurse I have no idea what she was doing or for and a second radiology nurse who held my hand and kept asking how I was doing, etc.

I had read up about thyroid nodules and the guided ultrasound FNA biopsy procedure but wasn't prepared to find out that the radiologist does them rather than the surgeon!! I still had questions and the nurses and radiologist were patient and answered them all and didn't rush me.

Local results were inconclusive, not being a fan of surgery, I had directed that the specimens be sent to Mayo Clinic's lab and their results were that all was benign and just a recommendation for an ultrasound again in one year. I talked to the surgeon and I feel more comfortable w/scheduling an ultrasound in 6 months and based on those results we can likely consider going a year until the next monitoring ultrasound.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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