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Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 10/15/2009 11:40 PM (GMT -7)   
I was wondering if anyone else suffers from headaches for the last 2 or 3 weeks I have been having severe headaches daily.  Could this be the Humira? May it be linked with the CD?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Apr 2009
Total Posts : 33
   Posted 10/16/2009 6:27 AM (GMT -7)   
I have also been suffering from headaches daily for the last month or so.....I thought I was not drinking enough water at first.  But I continue to get them regardless of hom much water I drink or what medication I'm on.

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 10/16/2009 5:27 PM (GMT -7)   
I did, but they came and went really. If they persist then you should probably set up an appointment with a neurologist. My GI suggested as much anyway if things persisted. Just keep an eye on it...
I didn't get these until I started taking humira, for the record.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 10/16/2009 5:45 PM (GMT -7)   
about a year ago, I had horrible headaches for about 2 weeks..I used ibuprofen...I know, not good. Landed me in a flare. I went to my gi and she gave me darvocet for them. It helps. I had an apt. with her about 3 months after that and she asked how my headaches where. I still was still getting alot of them, so she suggested I take a zrytec every night. So I started last Dec. and I don't miss a night taking it! I hardly ever have a headache anymore.

New Member

Date Joined Oct 2009
Total Posts : 4
   Posted 10/16/2009 6:41 PM (GMT -7)   
I have been experiencing headaches as well, but they don't seem to be related to anything like ( sleep, hydration,foodetc..)  They just come and go when they please.  I think it is related to CD.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/16/2009 7:03 PM (GMT -7)   
There has been a small correlation between crohns and migraines.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

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Make sure your suffering has meaning…

Regular Member

Date Joined Aug 2008
Total Posts : 37
   Posted 10/16/2009 7:17 PM (GMT -7)   
Yeah, I've lately been getting headaches, as well.. I think I can actually go back to when I was first diagnosed with CD that I've experienced some painful migraines. Never used to have such headaches until then.. But it is on and off.
20/f - Diagnosed with Crohn's for 6 years. ~ Waiting to backpack through Europe ~
Western Medication - Imuran & Entocourt
Currently on Remicade (First Infusion January 26th/09 - Next Infusion Oct 8/09)
Natural Medication - Probiotics
Chinese Herbs for Inflammation

Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 10/16/2009 8:14 PM (GMT -7)   
So was waking up with headaches a couple times a week all summer. Couldn't figure out what it was...thought it was possibly blood pressure or a lack of some type of nutrition. After a routine blood check I found out my sugar was too high. Was dxs with type 2 diabetes and now watching my sugars. Now, the headaches in the morning are gone.
 "Get busy living or get busy dying"

Regular Member

Date Joined Apr 2007
Total Posts : 208
   Posted 10/17/2009 6:46 AM (GMT -7)   
Humira gave me horrible headaches. Migraines almost everyday.

Regular Member

Date Joined Jun 2005
Total Posts : 58
   Posted 10/17/2009 4:57 PM (GMT -7)   
I get migraines. No fun. I take Treximet for them probably twice a month on average, but it really varies...I can go two months with no migraine, and then have three a week. I held off on getting a migraine diagnosis for a long time...just couldn't deal with one more thing, you know? But I'm so glad i did, because the migraine meds make the headache go completely away. Take care!

Regular Member

Date Joined Feb 2009
Total Posts : 139
   Posted 10/18/2009 9:02 AM (GMT -7)   
From what I've read, Humira can cause headaches...I've suffered from migraines for years and was nervous about starting humira as a result...I've been lucky though as my headaches have not increased since starting humira...I agree with everyone above, you should see a neurologist for the headaches...
42 year old woman diagnosed with UC 1991, Jpouch surgery 1992, Crohn's diagnosis 2009....I also have Graves disease/Hypothyroidism and psoriasis
Current meds: 1200mg xifaxin, 3mg entocort, Humira (started 3/23/09), 150mcg synthroid, 20mg aciphex
Past meds: bactrum (side effect: rash), pentasa (tried twice in a 4 week period, severe nausea, vomiting and D), levaquin (ineffective), flagyl (works, hate the side effects), enemas and suppositories (ineffective), imuran- tried 2/09, landed in the ER with severe back pain and raised liver funtions....

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 10/18/2009 10:09 AM (GMT -7)   
I have been suffering bad with headaches the pounding behind eyes and thru temple is unbelievable nothing takes it away except a gravol might help for a few hours n sleeping ......let us know how you r doing....lyn
      WE have anxiety and panic.......................................Anxiety and panic do not have US
   Crohns.............Anxiety n  Panic...............Seizures...............Pyoderma Gangrenosum.....Fibro  
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Julia Hill
Veteran Member

Date Joined Mar 2008
Total Posts : 560
   Posted 10/18/2009 10:39 AM (GMT -7)   


I've had crohn's for 30 years and have never had a problem with headaches until I started Humira.   My GI told me it is definately a side effect of the medication.  They have not become bad enough that I am willing to discontinue the Humira.   I do notice though that there is a pattern meaning I know I will get a headache within 2 hours of taking my needle.  I notice that I also cough more with the Humira.

Hope this helps.



Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 10/19/2009 1:51 AM (GMT -7)   
I have suffered from migraines though for a long time.  I had been on Elavil to prevent them then when there was a thought to having children (before my divorce) my neurologist took me off of them.  I was doing so well off of it that it was decided I would not go back on them.  I had many more headaches while on Remicade as opposed to Humira but the recent headaches have been a daily ordeal.  Granted a day or so after this post I was suffering from a fever etc and now have a sore throat but prior to this I was having them all to often

Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

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