SCD and getting off remicade

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Regular Member

Date Joined Apr 2009
Total Posts : 384
   Posted 10/16/2009 1:05 PM (GMT -7)   
I've been on SCD six months and I think it's working pretty well. I'm going to continue it for 2 years at least at which point I'll consider getting off Remicade. Remicade wasn't really working well and I suspect it's the diet that's really keeping me going here (I could be wrong though). Has anyone been on SCD while on Remicade then got off Remicade? How did you do it? After how long on the diet. What did you tell your doctor? Thanks . . . and please don't discourage me from this goal of getting off meds eventually. I'm willing to take the risk.
Crohn's Colitis diagnosed 6/08
SCD since 4/09
Remicade since 6/09
Boswellia + Acidophilus

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 10/16/2009 1:50 PM (GMT -7)   
I've been on SCD for 10 1/2 months. I was on Humira up until my surgery a month ago. The surgeon told me to stop the Humira, and I had no problem with that! So far, so good. I am still taking Pentasa though, and would like to get on LDN.
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: Humira since 7/08, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, B-Complex, Vitamins D, E, & K, Calcium, Magnesium, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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