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New Member

Date Joined Oct 2009
Total Posts : 4
   Posted 10/16/2009 6:57 PM (GMT -7)   
I am taking pentasa 500mg along with vitamins and supplements ( b vit complex, D vit, multi, fish oil).  What other medications are people taking and a quick run down of what they do and any side effects you have had.  I'm not sure my pentasa is getting the trick done, I have flare ups often and it is affecting my home and work life.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/16/2009 7:20 PM (GMT -7)   
Ivy6 has a link in her sig that you might want to check out.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 10/17/2009 1:42 PM (GMT -7)   
My symptoms got worse when I first started taking pentasa, but it really helps me now. You may just want to wait and see for a little while. If it's still bothering you then you'll probably want to talk to your doctor and work something out. I know other people find success on its sister med Asacol sometimes when pentasa hasn't worked. Hang in there!
And, in case it comes up like it usually does, seeing white beads in your stool is completely normal.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 10/17/2009 2:58 PM (GMT -7)   
Here I am: you might like to click on the meds link in my sig.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 10/17/2009 9:38 PM (GMT -7)   
I took Pentasa when I first got diagnosed. I was only able to stay on it for about a month though, because for whatever reason, it gave me bad tachycardia (my heart rate was around 130 after laying down for an hour...). It was quite scary for me! I barely noticed an improvement in my symptoms while I was on it too, but I wasn't on it for long so that's probably why. Since then, I've been on Entocort (it's been over 6 months now) at 9mg/day, but I just started to taper down to 6 mg within the past week and a half or so. I haven't had any side effects on it whatsoever, except that I've developed some stomach ulcers which may be related, but I've been able to treat those so it's fine. Pentasa/Asacol aren't enough for a lot of people, especially if you're in a flare. If you don't feel like it's enough, Entocort is usually the next step up I believe. It works pretty well, it's similar to Prednisone without all of the bad side effects (it's still a steroid, but it's not systemic like Pred is), so it may be something to look into if you're not confident in Pentasa. If you're saying that you have flare-ups often, I would think you would probably need to be on something stronger. Hope this helps!

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 10/18/2009 6:06 AM (GMT -7)   
It has been a long time since I tried Pentasa but I believe when I started taking it that it made me pee a lot...and I mean alot.
And I had to take something like 16 pills a day. No way. I hate taking anything as it is, and you want to me to pop 16 pills of
this stuff a day? Nope...wasn't doing it. lol
Living with Crohn's Disease since Jan./2000 
I'm a true Crohnie with IBS and Arthrities too. I have Crohn's very mild compared to a lot of Crohn's people.
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               Cimzia Injections. Just started on 9/30/2009                      
No Surgeries

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