Posted 10/17/2009 10:38 PM (GMT -6)
I took Pentasa when I first got diagnosed. I was only able to stay on it for about a month though, because for whatever reason, it gave me bad tachycardia (my heart rate was around 130 after laying down for an hour...). It was quite scary for me! I barely noticed an improvement in my symptoms while I was on it too, but I wasn't on it for long so that's probably why. Since then, I've been on Entocort (it's been over 6 months now) at 9mg/day, but I just started to taper down to 6 mg within the past week and a half or so. I haven't had any side effects on it whatsoever, except that I've developed some stomach ulcers which may be related, but I've been able to treat those so it's fine. Pentasa/Asacol aren't enough for a lot of people, especially if you're in a flare. If you don't feel like it's enough, Entocort is usually the next step up I believe. It works pretty well, it's similar to Prednisone without all of the bad side effects (it's still a steroid, but it's not systemic like Pred is), so it may be something to look into if you're not confident in Pentasa. If you're saying that you have flare-ups often, I would think you would probably need to be on something stronger. Hope this helps!