I happy to hear you did have some sort of time with relief. How is the surgery helping now? I also just turned 25 in July (probably around your surgery time, when I also was in the hospital from a start of my period)
What has the doc say about
children? Some people say to except the doc to tell me have a child now, and start treatment, does this sound right? (I'm getting married in 5 months, children right now is not what I want)
Most of all I just need the pain, tiredness to go away!!!
it's funny, I've always had periods like this, I thought it was normal, and going to the hospital thought it was the crohn's flaring, but everytime they took blood test, it came back my crohn's wasn't flared. I would even tell the doc it started with my period. I get "that's odd, I'll send you home and make sure you make an apt for your GI" why has not 1 doc say 'maybe it's endo'
Tracy from Montreal,Diagnosed with CD at age 18 but went undiagnosed for 10 years. 17 years with CD, Remicade for 1 year 4 months. Caused remi induced RA, crippled for 8 months
on humira, working for RA but CD is getting worse everyday,been on humira only 4 weeks
Pantasa 8 tabs a day
Provacede 1 daily for the ulcer's
Imuran 1 and half tabs (50mg)
Previous meds: Pantoloc, Predizone, tapered down from 10 pills 8 different times.(horrible side effects),Lots more,list is way to long.
Unable to work last 2 years and counting.Scope says I'm clear of CD,waiting for biopsie. May have Endometrioses, again waiting for another apt.