Thanks FallColors for the info, I have talked to the GI a couple of times about a colo rectal surgeon - even have one in mind that we would like to use as my brother in law is his patient and he is more than happy to meet with us. Problem is GI won't refer us at this time, (cannot see one without a referral) he feels that the abscess is steadily shrinking, I live in BC (Canada) ad the only Pediatric GI's are at Children's hospital in Vancouver, so it is almost impossible to switch GI's, and to be honest, this one has been pretty good to us.
Before going on LDN his inflammatory markers were very high, after being on LDN for 5 weeks all of his blood work was so much better, imflammatory markers were normal, hemoglobin was normal, WBC normal, so at this time he wants us to stay the course with diet and LDN and re evaluate in February, I'm good with that, but definitely will keep in mind if the abscess walls off, or he gets fevers etc, to get him in ASAP.
My son told me today that the one fistula he had first is now soft and he can't feel it at all, nothing poking out of it anymore. The other one is still tender (this one arrived about 2 months after the first one) so we're really praying that this one does the same and by Christmas he'll be feeling even better.
But again, thanks for the info, and we will definitely keep an eye out for anything unusual.