After a week of total enteral nutrition with Peptamen Jr. (elemental formula and Vital Jr.(semi elementla formula) my 12 year old daughter is doing amazingly well!
Only 2 BM a day, no pain, no blood, no cramps.
We went to see the GI today. Cata had a build up of the formula on her tongue, and the GI wanted to make sure it was not a yeast infection. It was just the build up and Cata scraped it off.(I read that in Beat Crohn's!)
The great news was the labs were in and her Sed. Rate dropped from 53 to 23!!!!!!!!!!!
We were all very excited, the GI was amazed and she is continuing with tapering off Cata from the Prednizone. She even mentioned she might be able to get off the other meds eventually.
We still have 5 more weeks to go, but this test has been a great motivator for Cata and all of us who support her.
I hope others give this a try. It is working great!
We will continue on semi elemental and elemental formulas but not Polymeric for now.
Warm wishes of health and happiness!!!
Mom of a 12 year old girl diagnosed on Oct. 2007.
Prednisone (tapering off)/Asacol/6-mp/Vitamins (Centrum Kids)/Calcium (Oscal)/Probiotics: Primal Defense Kids/ Omega 3: Coromega/ Total enteral nutrition with Peptamen Jr and Vital Jr.
Post Edited (Catasmom) : 10/20/2009 12:32:55 PM (GMT-6)