This is gonna be a long one I'm afraid. I feel very frustrated right now. I need advice on my condition and if I need a new doc.
I live in a small southern town and have already been "blown off' by 2 GI docs who told me I had IBS. Finally, I went to a larger town to a major medical center and got diagnosed with colitis they think is associated with diverticular disease. They put me on colazal and honestly, I have never felt like I am in remission from this. They added rectal meds and those work pretty good when I use them. I am so tired at night that I often fall asleep before I put them in or I wake up with them still in my hand. Fatigue has been awful. Also this summer, I had these splits in my rectal area that went away when I started using cortifoam again. At this time, I had fever and sores in my mouth. My PCP did a blood test from prometheus and it was positive for crohn's. Will they change my treatment plan if the docs agree that I have crohn's? What other testing would they need to do? I just want to feel better and find a doctor who will not just blow me off. Oh, the doc at the major medical center, told me to find a local GI. He is better guarded than the pope and only sees people who are dying I guess. I never thought it would be this hard to find a good GI doc. I think I have crohn's but I guess what I think doesn't matter. BTW, I am also work in healthcare and have a lot of schooling on pathology. I don't think doctors like it when their patients are well read on these diseases. Thanks for listening! Any advice is greatly appreciated.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
50 + female
colazal, fish oil, synthroid,
zoloft, VSL#3 probiotic.
Blood test positive for Crohn's