A few things:
The people on this forum tend to come here because we have severe cases, but many other people are not here precisely because they are able to live normal lives. The point is, don't take our examples as the only ones. There is hope for a normal life, but you will have to be a lot more conscious about
what you eat.
Second, look into the SCD diet or Maker's Diet. People have had great success with these. They don't work for everyone, and they can be strict, BUT there are some who have been able to live even without medicine (I do not advocate this in any way. Stay on your medication!) because of their ability to adhere to these diets. It seems to help people in general to avoid gluten, sugar (sweeten with honey or stevia instead), and/or high lactose dairy (yogurt and aged cheeses seem to be fine). HOWEVER, everyone has a different diet that works for them. There is no set Crohn's diet so try and start simple e.g. chicken, broth, diluted juice, etc., and work your way up. Keeping a food diary helps to see what bothers you. Also, for now it would be best to avoid raw fruits and vegetables.
Probiotics: These help regulate your gut flora and ease symptoms. Popular ones recommended by GI's themselves are Align, VSL#3, and Culturelle. They can make a significant difference in how you're feeling. Many studies suggest that part of the reason why we feel so terrible is an imbalance in intestinal bacteria, and that probiotics can help fix this.
Light walking helps when you are up for it, don't overdo it physically, steroids will help you, but be prepared for some silly side effects like roid rage, moonface, and insatiable appetite/weight gain.
And something to remember would be that we all feel really depressed at times. I have had thoughts of ending my life, but we have to keep in mind that these symptoms, no matter how bad they get (I have almost died twice in the past year and a half) do get better. Life is not over so do not give up! It's really difficult at first, but just hang in there and feel free to ask questions/vent here as much as you like.
This place has been a life saver for me. If you have a question, ANY kind, someone will be able to answer it.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."