Confused about results

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Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 10/23/2009 9:56 PM (GMT -7)   
Approx 3 years ago I had my first colonoscopy and the doctor found some "spots" that seemed out of the ordinary but no ulcers, bleeding etc. After the biopsies he said he thinks it is Crohn's and have been on different medications since. Well, 3 years later I have been up and down with flare-ups and continued complaining to the doctor so they decided for another colonoscopy.

Following the procedure he gave me the following information on sheet of paper:
- Friability, erythema, congestion & ulceration in the sigmoid colon and mid-descending colon that is compatible with Crohn's.
- Ulceration, friability, erythema & congestion in the terminal ileum
- Otherwise normal colonoscopy to cecum
- Increase Imuran to 150mg from 100mg and add Entocort 3mg 3x/day

I recently got back the biopsy results with: Mild Colitis. No Cancer.

I currently take (in addition to the above) 1 Gram Pentasa 4x/day. Of course a few days after the procedure I begin to feel bad again and he prescribed a dose of Flagyl for 10 days and my family doctor put me on 40mg of Prednisone a day for (possibly unrelated) pain in my tailbone.

Now to my question. With the biopsy results, does it seem to indicate that I have ulcerative colitis instead of Crohn's? I have a followup appt with him in about two weeks and am confused on the results. I have been popping a lot of pills recently and think I only feel better because of the pred.

Post Edited (ChronnieMan) : 10/23/2009 11:19:02 PM (GMT-6)

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 10/23/2009 10:15 PM (GMT -7)   
If your inflammation is patchy/skipped with patterns of healthy tissue in between inflamed then that's definitely crohn's, affecting your colon is termed as crohn's colitis (since colitis simply means inflammation of the colon)...lots of crohnies have CD affecting their colon's only, it's a matter of what your pattern of inflammation is like and how deep it goes, generally with CD the inflammation can affect the many layers of the intestinal lining (with the exception of miler cases sometimes) but with UC it's srufacable only and limited to the colon/rectom, CD can affect any part of the GI tract from mouth to anus.

bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
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Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 10/23/2009 10:24 PM (GMT -7)   
Thanks for the reply pb4. That makes sense, I will be sure to ask him some more questions when I go in. I just don't really feel I have improved much (if at all) over the years and have greatly increased my meds. I am contemplating making a few hour trip to the IUPUI Division of Gastroenterology. I just don't know how to approach my doctor to not make him angry wanting to speak to a second doctor. Not necessarily a second opinion, but different treatments I can pursue.

Veteran Member

Date Joined Sep 2005
Total Posts : 517
   Posted 10/23/2009 10:51 PM (GMT -7)   
Have you provided on your post, the complete pathology report from the biopsy? if so, the doctor (pathologist)interpretating the cells in the microscope has not adequately addressed whether the inflammation and appearance of the cells, location (in bowel wall) etc. whether crohns or colitis. I see no description at all, of the cell appearance, to the point where I question if the biopsy has been interpreted at all, or if a biopsy was actually taken. Those 4 words are not reflective of biopsy pathology. If thats it, the pathologist has not done their job, or the doctor asking for the interpretation from the pathologist only asked for a limited interpretation. Ask for the pathology report for the biopsy and specify you would like the full interpretation: 1. extent of inflammation and 2. that inflammation further interpreted for consistency or inconsistency with colitis or crohns. 'Mild colitis' is a conclusion without basis. aA the cell appearance comes before the conclusion, and that is absent.

The word friable on the colonscopy report leans to crohns...synonomous to brittle I suppose is more like dry area and thats crohns, but that also depends on when you started the prednisone versus if the dryness (friability) is crohns related or from the meds now. erythema yes inflammed. congestion yes mucousy. compatible with crohns...

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 10/24/2009 7:37 AM (GMT -7)   
The biopsy results I got mailed was the four word summary. When I go back for my appointment I will ask for more information and better explanation.

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 11/4/2009 7:31 AM (GMT -7)   
Thanks medchrt1,

I am going for my follow up today and will be asking for the full report, etc.
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