It was very interesting hearing of your journey. It was in many ways similar to mine.
I only have a 'mild case' of crohns, apparently, (thank god!) and there is some question, one doc, told me, whether I have UC or Crohn's, though when they first did a biopsy, they were sure it was crohn's.
I bought the SCD diet book. Was pretty sick at the time, so couldn't really judge whether it was working, but the principles seemed sound. Seemed a good diet even for a healthy person, and my BF at the time, did the diet with me, and felt better for it.
I then broke up with BF and began living alone, (no, he couldn't psychologically handle that I was so sick and not able to work...I was already used to nursing myself, so went it alone,) and after two years of Imuran side effects hell, I went off all drugs to see if I'd be ok without them, and WAS. I then went back to the SCD diet. I got rid of all processed foods from my diet. I was happy to be off all drugs, and didn't want any chemicals in my food either. Didn't have any social life due to fatigue anyway, so cooking and eating only at home was fairly easy.
It took another year or two for my immune system to recover, and for he side effects of the imuran to go away. Chronic nausea, some vomiting, migraines, fatigue, joint pain, depression. I'd get nausea pills and pain medication as required, but otherwise was remaining drug free on a pure diet and vitamins, but never having a formed bm.
I managed to stay free of flare ups, for 5 years off all drugs, and eating a pure diet, even though it took two years after getting off Imuran for the chronic nausea etc to really go away. I did have one flare due to stress, but a quick course of Pred knocked it on the head, was able to taper off quickly, and life went on.
My mother died recently, and I moved interstate to help out my family, and because no-one else was really as available as I was, being unemployed, I did most of the work. Even shifting into the nursing home with my mother, 4 days before she died of two types of cancer, to nurse her round the clock. My father needed a lot of support. I then packed up my home and moved up to the farm to be there for my father more. Of course! All this has produced a flare up, and I couldn't get off the pred. So. Back on Imuran.
I've realised I need to go back to the country town where I was living, and live the way I was, before all this started, to get my health back. After 8 years living alone, in peace, with perfect control of my diet, and being able to control my stress levels, I need that again, now.... So, am in the middle of this change now. I need to live alone for my health. I need that independence, too. Here on the farm, I'm reliant on my father or bro for every doc appt, and script refill, every errand in town, and it's too much to ask, and i don't like even asking and tired of that. I'm going. And i'm SURE hoping I can get off the Imuran quickly, once I have my own place again, and I have my stress levels way down, and my nervous system has had some time to recover. I also have many unshed tears re my mother.
I will be going back to a diet pretty much SCD, but definitely free of anything processed! The vitamins I'm taking are a calcium with D for my bones, because of the small amount of pred I'm on, but been on it for a month or more, and will be for a few more months. Magnesium. Really helps with PMT symptoms and foot cramps. Cod Liver Oil caps. 1,000 IU. Slow release 1,000 IU Vitamin C. A good B vitamin. A probiotic. Those are mainstays, but, I have Kelp as well, and others I can't think of right now.
In recent months I had a chest infection. I had a CT scan, and found I have the beginnings of Bronchiectasis. Which, is a rare complication of Crohn's. Been on lots of antibitocis for weeks and weeks for this, and will be for many weeks to come. A spiriva capsule inhaled each day as well. Probiotics are imperative because of all these antibiotics. My father has bronchiectasis, so I could have it on a genetic basis.....or, because of the Crohn's. I hate all this. I did a search of this forum last night, and no-one else seems to have crohn's with bronchiectasis.
I hate the way a 'mild case' of Crohn's has taken over my life basically. I've had it since I was 27, and am now 47. I am oh so grateful I don't have it worse! But, even a mild case takes over your life, with symptoms, drugs, side effects of drugs, chronic fatigue, you name it.
The ADD diet, my blood type diet and SCD diet for Crohn's, are almost exactly the same. This is a strong indication to me, which type of diet is the best for me!