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Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 10/28/2009 4:47 PM (GMT -7)   
I am feeling so upset and I can't seem to shake it. I went to an ENT appointment this afternoon. I started my last flare up because of an ear infection and a subsequent series of antibiotics. The ear drum perforated and it hasn't been right since December. I have been having pain and have some problems with my hearing. My GI referred me to an ENT doctor at his hospital in May and I have had to wait months for today's appointment. It was originally scheduled for October 1st but they called to ask if I would see another doctor on that day. I said no, since my GI had referred me to her specifically. They rescheduled to today, 4 weeks later.

Anyway, I got there at 12:50. I had a hearing test at 1, and then I was put in a room to wait for the doctor. At 2:30 a woman came in who said she was an "associate" of the ENT doctor. She proceeded to rush me around, sticking things in my ears and then freezing the inside of my nose and sticking things up my nose too. It was all very painful. She scribbled down a couple of medications on a prescription pad and said to come back in 2 months. I asked whether I would be seeing the doctor, and she said if I really wanted to I could, but the other doctor didn't really need to see me unless I was a really serious case. She made me feel like a whiner, and kept telling me that what she was doing wasn't painful, even though it felt like it to me. I said that I was fine, and she left me crying in the examination room. I left and was just crying and crying for about an hour. I still feel right on the edge of crying, and feel wiped out.

I felt so upset, because I just feel that it is always like this with doctors. I think that is what made me cry the most - the sense of frustration that I cannot control my body, and that the doctors don't really have any answers. Also that the doctors don't trust our judgement, even though they have no idea what we are feeling. I hate feeling like this, and I can't tell anyone at home about it because it probably seems a little ridiculous.
44 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March this year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 10/28/2009 5:07 PM (GMT -7)   
Of course anyone would feel upset. Call and ask who and what title does the person have that preformed your actual exam. Associate makes me wonder if it was just a PA or NP. They should explain everything they are going to do, before they do it. Not doing so is unprofessional at the very least. You pay for your doctoring, so therefore they need to take the time to really actually take care of you. Call your GI and ask him to refer you to someone else, tell him your experience with this associate. Anyone who invalidates your pain I would take a (metaphorical) taszer to for ya...:) Unfortunately alot of us have been there, and it absolutely sucks I am so sorry you went thru that.   I have to admit I have made the comment about how it is bad manners not to apologize for hurting someone, even if it is part of the exam.  Serious what kind of mental pathology do people have that they do not apologize.
Sometimes it helps to take someone with you to advocate for you.

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 10/28/2009 6:11:08 PM (GMT-6)

Regular Member

Date Joined Nov 2008
Total Posts : 348
   Posted 10/28/2009 5:08 PM (GMT -7)   
Sorry to hear. I have had bad doctors in the past. I think female doctors are nicer and better. I think I heard on 20/20 Friday that they are better too.
27m - Dx January 2005: UC/Crohn's
Entocort 9 mg, Asacol 4 x 3, Flagyl 500mg x 3

Carnival Huckster
Regular Member

Date Joined Oct 2009
Total Posts : 159
   Posted 10/28/2009 5:50 PM (GMT -7)   
It sounds like your ENT was a poorly run operation.  I have been to some of the top medical centers and, even at those, there is tremendous variation in the quality of doctors and general level of care available. 
One foot doctor I went to see (because I had numerous plantars warts on the bottom of my feet) informed me that it would require at least 6 excruciating follow-up appointments -- paid out of pocket for a total of several thousand dollars -- and told me to visit his personal web site to buy a bunch of expensive footcare products.  It was the worst doctors appointment ever; he was in and out of there in less than 5 minutes! 
After that I went home and did some research and found that for less than $5 I could buy apple cider vinegar and cotton balls to soak the plantars warts overnight.  Low and behold the warts were all gone after several weeks of soaking! 
Another time I didn't like the PCP they assigned me, so I asked around and got another one who was awesome.  I still travel about 1 and 1/2 hours to see that PCP because I like him so much and he is so responsive.  He returns emails practically 24 x 7.
I guess this is a roundabout way of saying that sometimes you have to go through the loser doctors to find the good ones :-)  In other more drastic cases (like my plantar warts) you have to cut out the medical establishment entirely because they don't do a good job at addressing a particular issue.
34 Year Old Male
Crohn's Disease for 12 Years
Current Medications: 9mg entocort (budesonide)
100% SCD for past 90 days (on and off for 10 years)
4,000 mg MSM for 30 days
Vitamins E, D, C
No surgeries

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