hello all, i would like to introduce myself to this forum. Let me give you a quick history on my condition. I was diagnosed with Crohn's disease back in march of this year. Ive been hospitalized twice in the last year for bad flare ups. the last time in the hospital i also had a c-diff infection. I also have a fistula somewhere in my small intestines. The last time i saw my doctor was back in april, and he put me on Pentasa 500mg, 3 capsules twice a day. The pentasa got me through the summer pretty good, only had a minor flare up every now and then..This last month has been somewhat hard though. ive been in pain alot more. The pain is not consistant though, some days i can be in alot of pain, and then ill have a day where everything is fine. My chrohn's is in the typical area where the small intestines meets the large intestines. Right now i can push on my right side, and feel a big lump there, and its painfull to push on. Sometimes i will get a sharp pain in that area that will llast from just a few seconds to about a minute. Also this past week ive noticed my energy level drop drastically. Ive been sleeping 12-14 hours a day.
I still feel i fairly new to this disease so i thought i would ask a few questions. First off, is it normal that i can feel the inflamation on the right side, should i be worried? Second, which medication do you recommend i try after pentasa. My doctor back in april said that if the pentasa didnt work, he wanted to put me on remicade. But i feel thats a big leap. Seems like there should be other things to try before going on remicade. Third, does everyone else have a hard time getting an appointment with their gastro doctor. I called at the begining of October when the pain first started, and they first told me Dec 18th was their first appt., after i said i was in pain they said they could squeeze me in on Nov 4. Still a long time to wait while im in pain. Does anyone have any advice on how to get into docs office quicker, or if anyone lives in the Detroit, MI area..do you have a good doctor to recommend. Sorry to make this post so long, i just alot to get out.