I'M BACK.....kinda.

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Regular Member

Date Joined Jan 2003
Total Posts : 224
   Posted 11/2/2009 10:00 AM (GMT -7)   
Well first I would like to say thank you for all of your thoughts and prayers. My sister told me that she was updating for me! :-)  
 I am still currently in the hospital. I had my first surgery(an ileocolectomy) on October 6th. It was done open, I wasnt away that it could be done laproscopically now. Anyways,  They removed about half of my colon and some of my small intestines, alot was scar tissue in the colon but what was in the small intestine was new developing disease. I was in the hospital for two weeks recovering from the surgery and was discharged with a fever and a UTI on antibiotics that I couldnt afford. (Zyvox=1000 dollars for 10 pills) I was also given Percocet for pain, which didnt help. After being home for a day and trying to talk with the doctors on an antibiotic I could afford I woke up in excruciating pain. We called the doctor and they perscribed Amoxicillon for the UTI and said if my fever(106.8 at that time) didnt go away by the morning to go ahead and come back. My head hurt so bad I could barely keep my eyes open. I took one of the Amoxicillon pills at about 12pm and at around 5pm the percocets were not helping, I went back to the ER. They did a CT and found the abscesses and I think the docs comment was this exactly "Its a good thing you came when you did, these abscesses were close to rupturing" which we all know could have ended horribly. I was admitted and started on three different antibiotics and the next day they went in and drained the abscesses. That was on the 17th(ironically, my 20th birthday. yeah ) And since then I have continued the antibiotics through a picc line, love these things, get poked once and they never have to again. During my surgery stay I had an IV and the veins would blow after 1-2 days. I looked like a pin cushion with bruises. They even draw blood from it!!!
They did a CT scan a few days ago and the abscesses are still present but are smaller. I have fluid collection under my incision so instead  of letting it heal they come in every morning and break it back open with a big Q-tip and drain it. Not the most pleasent experience to say the least. They have started packing it to keep it open the last couple of days.
The doctors are thinking another 5 days on the IV antibiotics and then try to do oral antibiotics and then....GO HOME!!!
yeah   yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah yeah
Of course I am still on TPN and Lipids through the Picc and I havent been eating much. I was on gut rest for a month, so its hard to start eating....Im sure some of you know.  I think its a mind thing......and its painful when I eat, but I am working on it. Baby steps.
And there is the issue of pain control, I currently have a PCA pump with a continuous rate and I can push the button for extra help if I need it. 
I am also gettin Toradol every 6 hours as needed.
So if I can get off the TPN and switch to oral EVERYTHING I can go home soon. I know that there is alot of healing left to go, but I feel confident that the worst is over.  I know the Lord will take care of things, he has so far!!!!
Oh yea, and I still have no insurance. AHHHH shocked   I cant even think/worry about that right now. Ill give myself ulcers worrying about that. Ha.
Well again, thank you for the thoughts and prayers, and Im sorry this is so long.


 "The Lord wont give me more than I can handle,i just wish he didnt trust me so much!"
  "let people be people before they are patients"

Post Edited (Beca123) : 11/2/2009 10:31:14 AM (GMT-7)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/2/2009 12:03 PM (GMT -7)   
Aww Beca I am so sorry to hear of the rough road you have had. Please know that I will continue to keep you in my prayers. Hope you can get these abcesses under control and can get onto the oral meds and go home. Don't worry about the hospital bills, there's nothing you can do to change the situation. Just focus on getting yourself better.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Feb 2009
Total Posts : 86
   Posted 11/2/2009 1:47 PM (GMT -7)   
i am so sor to hear u have gone threw so much i will
keep u in my prayers thinking of u
im a 40 yr old woman who has CD since 1993..
current medication is pentassa and purinethol.

Regular Member

Date Joined Aug 2009
Total Posts : 90
   Posted 11/2/2009 5:29 PM (GMT -7)   
WOW lady that is a LOT to go through, I know I'm captain obvious... lol. Hope all the best for you though as you recover, keep us updated
24 female, dx w/CD finally in July 2009, currently taking remicade, prednisone to counteract side-effects of remicade, pentasa, cipro, flagyl, probiotics, celexa, bentyl, and biofeedback.
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change" Charles Darwin

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 11/2/2009 5:32 PM (GMT -7)   
What a tough young lady you are Rebecca!
Will put you in my prayers for a speedy recovery - keep us updated!
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 11/2/2009 10:31 PM (GMT -7)   
Hope things go better and you get home soon. Theres no bed like your own and Ill bet there are a few things you would like to eat
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Jan 2005
Total Posts : 1830
   Posted 11/3/2009 4:23 AM (GMT -7)   
Darn girl, you've had a rough month! Keeping you in my thoughts and prayers.


Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 11/3/2009 4:47 AM (GMT -7)   
I hope your recovery is speedy and complete. You are one tough cookie!
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.

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