The last month has been a rough one for me. In addition to thinking that my CD is flaring (thought my dr says there's nothing physically wrong) I developed blood clots in my lungs, then pneumonia, and I'm FINALLY getting over it all. One day last week I woke up and was in a lot of chest pain again, and ended up going back to the ER because I couldn't take a breath in without pain. It turns out that the clots are dissolving, but I still have some...small ones. The ER dr says that as the clots dissolve, they can cause pain, so that's what the pain was from. Good news was that the pneumonia I developed from laying in bed in the hospital had resolved!! Anyway, in the ER the dr decided that putting me on prednisone (60mg for 5 days, 40 for 2, 20 for 2, 10 for 2) would help get rid of the remaining clots and help my chest not hurt as much. I will say my chest feels a lot better.
BUT, and it's a big one....now my legs hurt so bad. I feel like I have the flu, just in my legs. They just ache so much and there's not much I can do to help it. If there's a bad side effect of a medicine, I get it. I don't know anyone else who feels worse on prednisone, but I do. Showers and baths help only while I'm taking them, and my skin is dry now from taking so many showers. I can't sleep cuz I can't get comfortable. I've tried taking darvocet and percocet at bedtime to help my legs relax, but it doesn't work either.
I'm just really frustrated. It seems that whenever I take anything, it helps one thing and causes another. Humira causes me to have sinus infections, antibiotics cause horrible diarrhea, pain meds make me nauseous, etc....(the list could go on and on). My dad always laughs because I'm never the typical patient. Things are always complicated with me. If I take a new medicine to fix something, usually I have to couple it with another to combat it's symptoms. Medicines shouldn't be like that, but with me that's how it is.
Does anyone else have joint pain while on prednisone? Am I the only one? Anyone have suggestions on how to deal with it or make it any better? I know I only have 6 more days of it then the pain will go away, but I'm really over it...
I'd appreciate any suggestions.
31 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, sublingual B12, Coumadin