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Regular Member

Date Joined Oct 2008
Total Posts : 79
   Posted 11/6/2009 6:45 PM (GMT -7)   
does anyone else experience night sweats? i'm 22 years old, female and just recently have started to experience them every night? i have mild crohn's and haven't had this symptom before? i wake up drenched then i get cold, i only sleep with a sheet on! is it possible for them to just start out of the blue?

Veteran Member

Date Joined Aug 2008
Total Posts : 5922
   Posted 11/6/2009 6:49 PM (GMT -7)   
     Gee, you are much too young for menopause but that is what I went through while changing life.  What meds are you on?
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 11/6/2009 7:06 PM (GMT -7)   
When I'm flaring I get night sweats badly - nothing worse than waking up in the middle of the night freezing cold, soaked like someones thrown a bucket of water over me and absolutely stinking! (One advantage of having a double bed to myself though - I just switch sides to the 'dry side' and change sheets in the morning, when I had a single bed hell I'd just head straight to the sofa rather than have the duvet change struggle in the middle of the night!)
Night sweats aren't pleasant and can often be a sign of something dodgy going on, it can be down to something as simple as a side effect (such as from steroids) but it can also mean your bodys trying to get rid of something like an infection or theres inflammation there. Personally, I get night sweats if I ever have to have a dose of steroids (rarely do as they don't sit well with me) or if I'm in a flare or about to flare. It might be worth having some bloodwork done to check for infection or inflammation, you lose a lot of fluid in a night sweat so make sure you drink plenty of water after to rehydrate and maybe add an electrolyte solution like Dioralyte (thats the UK name, I think its something like Pedialyte in the US I'm not sure)

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 11/6/2009 7:43 PM (GMT -7)   
I've had terrible night sweats the last couple of nights! I love being cold, and usually have a fan on in my room, the window open and my vent closed. So for the past couple of nights when I've woken up drenched it's been especially awful/cold. Ugh! I always get them when I have a virus though I think and not really when I'm just having a bad Crohns week. For example this week I've had a really bad cold/flu and I think that's the reason for my current night sweats situation
19 y/o female, diagnosed crohns december 2008
currently taking 500 mg pentasa 4x daily

Regular Member

Date Joined Dec 2008
Total Posts : 73
   Posted 11/6/2009 8:33 PM (GMT -7)   
I experience night sweats when I'm in a flare. An urgent trip to the bathroom usually follows (bowel explosion). I, too, wake up drenched and then feel really cold. Not all that pleasant at 3:00 a.m! I also wake up in a sweat for about 3 mornings in a row right before my period comes...every month without fail.
Diagnosed with Ileitus October, 2008 at age 37. Probably Crohn's.  Weaned off Entocort. Celiac Panel negative. Food Allergy testing negative. Intolerance to arugula, raw spinach, pistachios and high fructose corn syrup. What's that all about? Trying to maintain good health and less bathroom visits with diet and DA Colon Care Formula probiotic.

Sir WipesALot
Regular Member

Date Joined Nov 2009
Total Posts : 42
   Posted 11/6/2009 10:42 PM (GMT -7)   
Been lurking for a while, but I signed up so I could answer this thread for the OP.

I had been diagnosed with mild Crohn's in 2004, flaring on and off since 2007. Then back in February of this year I started with night sweats pretty suddenly. It was part of a flare up - I would wake up absolutely drenched.

The sweats actually continued for about three weeks after the two week flare subsided. I got it checked out (they look for TB) and they determined it was probably the Crohn's.

The bad news is the sweats in my case were a sign that the Crohn's was progressing. Now I have "moderate" Crohn's and have been stuck in a flareup for the last four months, and they've moved me from Pentasa to Pentasa/Prednisone/6mp. I cannot get off the Prednisone and I'm still waiting for the 6mp to "kick in".

It is definitely possible for them to start out of the blue. I'm no doctor and everybody is obviously different, but you may want to go to your GI and see if you can figure out if your Crohn's is progressing. I know most docs rightly don't like to move you to the harder drugs until you need them, but if you can get on top of it now, you might be able to avoid what I am currently going through. If you start getting abdominal pain that you've never had before (even if you've had abdominal pain all your life), especially in response to foods you used to tolerate ok, then welcome to my world. That's what happened to me prior to this last flare.

Again, just my opinion based on my own experience. Your mileage will likely vary.

Veteran Member

Date Joined Jan 2003
Total Posts : 6131
   Posted 11/7/2009 3:52 AM (GMT -7)   
yep... mine are mostly head , face neck and along my spine.. im also have fevers of unexplained origin for the last 3 years , but ive had the night sweats for years before that..

Veteran Member

Date Joined May 2003
Total Posts : 815
   Posted 11/7/2009 1:39 PM (GMT -7)   
Your old school healing well eh randy? ha.

kiki87, as you have read, this can be a fairly common thing with this disease, night sweats. It sucks... for me it happens for a few months goes away, repeat.

I have had the shivers as well. and fever. Be sure to mention those things to your doctor just to be safe, as well : )

Good luck and I hope the sweats go away for you soon!
im a professional... on an amateur level !

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 11/7/2009 3:25 PM (GMT -7)   
Another with terrible night sweats for years... Goes along with my flares. I sleep with a towel on the bed and a stack of shirts by the pillow. It is so frustrating because it's so hard to get a decent night of sleep! Are you having any low-grade temps? Worth checking. And, I would let your doc know.

Hang in there.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09

Veteran Member

Date Joined Apr 2003
Total Posts : 973
   Posted 11/8/2009 7:46 AM (GMT -7)   
I get night sweats when in a flare. It's annoying and gross.
Stephanie, 29, married for 10 wonderful years and mommy to two awesome toddlers
dx with Crohn's 4/2003, in remission from 11/2003 to 7/2009
omeprazole 40mg, zoloft 100mg, apriso 1500mg, dicyclomine 3/day
dx with bipolar II 8/2009, re-diagnosed with bipolar I 9/09
Apparently allergic to lamictal...waiting on next rx

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