Scared to death this week, As all 4 of my Dr's saw so many signs that pointed to MS!!!! But got a HUGE relief that it's NOT MS. But after looking up Fibromialgia, scared to death about it as well. Part of me is also releaved that I now know what is causing all the pain in my body.
That I had a complete melt down this past week. Actually I think the good cry that I had, did my body and mind good. It relieved A LOT of stress that had been building up. As much as my husband and our 13 yr old daughter try to understand what Crohn's is, and now about Fibromialgia and try to help me, I get frustrated.
Actually frustrated and Mad as hell with myself!!!! As I now can't even do the simpliest of yard work. Which considering thatI had my own landscaper/Florist business for 35+ years, making huge rock walls, rock gardens, lugging bags of soil, rocks, trees and yep the list goes on and on. Now cutting my perenials down for the winter is a HUGE task. Forget about digging them up and dividing them. GRRRRRRRRRRRRRRRRRRRRR. Darn body anyways.....
Felt like the WORST mom this week. As our 12 yr old daughter turned the BIG 13!!!! on wednesday, and I was stuck in bed, with the pain all over my body and a Crohns flare up. Hubby had to work a 14 hr shift on wednesday. I had all these plans to make this Birthday more special then any of the other ones, and they got thrown out the window.
The topic that I wrote about 2 weeks ago, *Rare Side effects from Remicade??? anyone else have them??? tells the whole story with my health this year. Now just waiting for 2010, as it HAS to be a BETTER year.
Sally from Milton NH.
Prevcid DR (1) 30mg every morning
Oxycodone (1) 30mg every 4-6 hrs Dicyclomine (2) 20 mg 4X's a day
Vicodone APAP (2-3) 7.5-750 At bed time
Potassium CL ER (2) 20mg 3 times a day
Ascecol EC (4) 40mg 3 X a day, Dicyclomine (2) 20mg 4X's a day
Pomrthazine (1) 12.5 mg 2-3 X's a day
Remicade doesn't like me anymore. Onto Humira
RICE chex's and I have become really really good friends!!!!!!