New scary this week! Cant take much more.

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Regular Member

Date Joined Apr 2009
Total Posts : 47
   Posted 11/10/2009 4:44 PM (GMT -7)   
Hey All,
Just a updated. Since my little hosp. visit last week. I was wore out day after friday then sat. felt good and sunday the bottom fell out. I woke up, ended up being dizzy, loss of balance, legs were numb and heavy, like I had to concentrate on walking and my heart felt race and I couldnt do anything but lay down. Well got up monday, just as bad could hardly drive went on lunch to my dr. and they did orthstatic measurements (pulse/b/p) lying, sitting, standing they were off, some neuro check, kept falling backwards. Oh my rt eye kept felling like it was swelling. Slowed dilation in that eye, not real bad. Then got put on EKG machine where they said I was Tachacardic. It has continued today, easied up a little, not as dizzy. Was given steroid shot, somthing for dizzyiness.
Right now there playing it up to my bad reaction with heart to CT contrast,, last thur. I know its not. If not better on thur. they are gonna send me for MRI friday to check for MS lesions on the brain since I have alot of those symptoms to. I cant believe it. I've got GI appt on 19th trying to get diagnosed with Chrons still and then this possibably. Both Auto-immune. I know my body cant keep up much longer, even my patients are saying how sick I look. I just dont know what to do. I raise 3 alone but fall in that you gross to much income, but cant pay bills or hardly buy food.We live very, very tight but I dont know how much longer my body can keep up working like this. God forbid I end up with MS also.
Just needed to vent a little I guess. SORRY confused   But thank you all for listening. Hope all of you have a good week.

Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 11/10/2009 5:26 PM (GMT -7)   
Hi Nebraska,

Go ahead and vent all you want. It's good for your sanity! A lot of us know your frustration and fear, sometimes it takes a lot longer than we think we can take, but they usually find the problems and start improving things eventually.

Hang in there and feel free to vent any time you feel the need.
I feel a whole lot more the way I do now than I did a little while ago.

Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 11/10/2009 5:48 PM (GMT -7)   
I hear you.  Hang tuff.   Everyone here feels your pain and many will send prayers and good vibes in your direction.

Veteran Member

Date Joined Mar 2006
Total Posts : 1354
   Posted 11/10/2009 6:38 PM (GMT -7)   
Are you on any meds that could be causing these symptoms as a side effect to them?
Want to wish you luck for Friday - let us know how you go.
Crohn's Disease
Ankylosing Spondylitis
Current meds: Methotrexate, Prednisone, Humira
Bowel Resection Sept. 07

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 11/12/2009 4:39 AM (GMT -7)   
I hope you find the much needed answers soon. Sending hugs your way.
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.

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