remicade and me

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Regular Member

Date Joined Feb 2004
Total Posts : 214
   Posted 11/11/2009 1:06 PM (GMT -7)   
Hi All,

It's been a couple of years since I last posted loads has happened mostly motherhood. It's made for a very busy time.

The crohn's has been behaving very well since I started Remicade just over a year ago. I just seem to get a little bother about a week before each infusion but nothing that slows me down much it just feels like I'm normal for the first time in years.

I've had a smooth run of things with remicade no significant infections, side effects limited to just a little tiredness and slight headache in the afternoon following the infusion.

That is until today... Had my infusion this morning all was just as normal but after I got home the glands in my neck have popped right up, sore throat, pounding headache extreme tiredness. It all feels like the start of a really nasty cold, trouble is I've not had a cold or any illness this soon after an infusion before. Should I be dashing down to my doctor 1st thing in the morning or do I sit it out and see if it gets bad. I know my immune system is at it's lowest ebb immediately after the infusion but how much lower than say midcycle when I have coped with colds with no problems at all.

Hope someone can offer some advice.

It's nice to be back. [img]/community/emoticons/wink.gif[/img]

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 11/11/2009 1:34 PM (GMT -7)   
Hi glad you are doing ok, my friend has this after every infusion she gets flu like symtoms for about 2 days and then is great by the 3rd day. you could ring your doc and ask him for advice.hope it soon goes. Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal 1st week of Jan. Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid,  citalopram 60mg (for Anxiety.)

Regular Member

Date Joined Feb 2004
Total Posts : 214
   Posted 11/11/2009 1:37 PM (GMT -7)   
Thanks Bev

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