Hi again!! I have been away from teh site for a while as my daughter has actually been healthy. Last week she got the flu and it sent her into a flare. (no diarrhea, jsut wt loss) Her doc will most likely be adjusting her meds. He changed hospitals so currently I am technically without a gastro doc!!!
I feel blessed, though because I called him to (long story short) come to his new practice and told him of her symptoms. He asked me to call her ped. adn order a calprotectin stool sample. the results took several days to come back, but normal range is under 120 and hers is 482. It is a marker for intestinal inflammation. Could mean her meds aren't working or a new flare. she lost 5 # in a couple days. I am feeding her a lot of boost plus and trying to get her to eat more protein and veggies. The problem is that she doesn't want to eat anything! Today her vision was impaired. (?) Any advice from anyone out there?
Thanks in advance!!
DX in 2000, (Mild to Moderate) take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe): Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin