Colonic Dismotility

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Regular Member

Date Joined Sep 2005
Total Posts : 83
   Posted 11/12/2009 10:48 AM (GMT -7)   
Just was wondering if anyone here has ever had problems with motility issues of the colon?  I have been suffering from this for over a year and a half.  It began almost overnight, after never having a constipation problem I am in a constant state of constipation.  I have no urges to go so I have to use strong laxitives and suppositories to have any kind of BM!!!  I have gone as long as 2 weeks without any BM.
If anyone has any ideas or can offer me any advise it would be much appreciated.  My local GI has no ideas what else he can do???
If any of you have found relief or any facility that offers motility treatments I would love to know.
By the way I have had Crohn's for about 10 years now and just had a Nissen Fundoplication for extreme GERD and hiatal hernia.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/12/2009 10:59 AM (GMT -7)   
I suffer with C not D. I have to use stool softners nightly in order to keep things soft and easy to pass. If I miss one day, I am in a world of hurt the next day. Hope that helps.
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Sep 2005
Total Posts : 83
   Posted 11/12/2009 11:18 AM (GMT -7)   
Nanners thank you so much for the reply!  After abdominal surgery in July for a fistula I used stool softeners for about a month with no relief or help to have a BM.  I take Miralax daily, but for any relief I have to take very large amounts of Miralax, like 8-10 glasses a day, then the problem is that you are tied to the house for the day.  Most of the time it does not work till the next day, and then I am really a slave to the pocelain goddess!!
Thanks  for the suggestion!!

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/12/2009 12:35 PM (GMT -7)   
Have you tried prune or prune juice on a daily basis to help keep things moving? Plenty of water intake can also help...I do realize that major C can happen to alot of people regardless of increasing their daily water intake and using prune/prune juice daily but I thought I'd mention in just incase you haven't gone that route.

bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Regular Member

Date Joined Sep 2005
Total Posts : 83
   Posted 11/12/2009 2:22 PM (GMT -7)   
Thanks pb4, I eat prunes, but have not tried prune juice, that may be a good route to go!!
I appreciate the reply and advise!!  Anything to help move things along.

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 11/12/2009 4:54 PM (GMT -7)   
i suffered with this for almost 1 year. there no meds or treatments for colonic inertia. they gave me a lot of prescription laxatives and motility drugs, one even had a black box warning and got pulled from the market! they all did nothing for me. i lost a lot of weight cos i could not eat cos i could not poop. i was greatly distended too cos i could not poop. it was miserable. i was told i could either live with it or get a colostomy (remove my colon since the motility function stopped working). this is where my life takes an entirely new direction. i looked into alternative treatments and i wound up going the diet route and did the makers diet. it worked. not only did my bowel function start to return in a few days, but my crohns symptoms greatly diminished. if it were not for diet, i'd have a colostomy right now. this was 3 years ago. so my suggestion, do the makers diet. it worked for me. hopefully it can work for you.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 11/12/2009 9:33 PM (GMT -7)   
Hi AKTeach,

I have always had a tendency toward constipation. Due to other problems I have been taking narcotic pain killers for 23 years and they have caused severe const. At it's worst I plugged toilets up with the first... "object" that came out. I hope all that unpleasant experience can be put to some use by helping out here.

First, if you use prune juice, make sure it is juice *with* pulp. Not all of them have pulp and it makes a very big difference.

What I do now is:
I take 3 stool softeners per day.
I eat at least 1 cup of pitted prunes per day (I don't like them but that's medicine for you).
I eat at least 1/4 cup of raisins per day.

It took me a long time to find this combination but it works for me. The raisins seem to greatly increase the effectiveness of the prunes while also preventing a tip over into diarrhea. This has been so effective for me that I haven't had to use that very large knife I keep in the bathroom to cut up that "object" so it will flush in well over a year.

I want to point out that if the motive function of your colon is completely gone then it may turn out that surgery is your only option. I hope this is not the case and you can find some dietary solution.

Please keep us informed. If nothing else it may help someone else who reads it later.
I feel a whole lot more the way I do now than I did a little while ago.

Regular Member

Date Joined Sep 2005
Total Posts : 83
   Posted 11/13/2009 9:36 AM (GMT -7)   
I want to thank all that have replied to my post.  These options that have worked for you just may work for me!!  I hope so!!
I will keep you posted, I see my main GI at Oregon Health and Sciences University on Monday and we will be discussing this. 
Again, thank you all!
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