Surgery soon, then Humira

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Veteran Member

Date Joined Jan 2005
Total Posts : 1831
   Posted 11/13/2009 4:47 AM (GMT -7)   
Well, I knew as soon as my GI walked into the room yesterday he wasn't happy.  He's always joking and he was way too serious looking.  In January, I had a CT done that showed no active disease but a narrowing and calcified barium in the neo ileum and anastamosis site.  Well, my Aug. scopes showed active disease there.  And since I've failed on Remicade (antibodies), dropped my white count on 6mp, asacol doesn't work --- I'm going to have laproscopic surgery to remove the barium and a small section of bowel.  Then he wants me to go on Hurmira.  I'm not looking forward to either one, but this is only the second surgery in 27 years I guess I should consider myself lucky.  So, I meet with the surgeon on 12/3 for the consult and scheduling.  (Oh what a lovely Christmas present)
No real questions at this point, just needed to get this off my chest and share with people who will understand.  DH jawed dropped when I told him -- after 27 years of this crap I think he might finally be beginning to grasp the reality of this DD.
Have a great weekend everyone.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/13/2009 7:38 AM (GMT -7)   
Awww Lorraine sorry to hear you need another surgery. Hopefully, though this surgery will lead to a long long remission.

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Nov 2009
Total Posts : 46
   Posted 11/13/2009 9:00 AM (GMT -7)   
Sorry to hear about your surgery- I am going thru similar thing. If the prednisone doesn't help me then I will need to meet with a surgen and then on to discuss the Hurmira. It's a bit overwelming. Let us know what comes of the Dec 4 meeting. Good luck!

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 11/13/2009 5:07 PM (GMT -7)   
I'm sorry to hear that, I wish you all the best.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications: Asacol, Precription Folic Acid, Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Jan 2009
Total Posts : 209
   Posted 11/13/2009 7:18 PM (GMT -7)   
My bowel resection and Remicade are the two best decisions that I've made.
Hope your decisions work out for you.
B-12injections,Pentasa,Loperamide,Entocort,6mp,Hydrochlorothiazide,8 week
Remicade,vitamin-D,Fluconazole.More over the counter vitamin-D. Remission since surgery and 5-years, of 8-week Remicade.

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