Laying Down = grumbling & BM's = no sleep

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Regular Member

Date Joined Sep 2009
Total Posts : 90
   Posted 11/13/2009 12:30 PM (GMT -7)   
Yes so can anyone else relate to this formula?

Laying Down = gut grumbling & BM's = no sleep

I have been suffering from this for several mths. now.
It is frustrating as hell.
Tests show that I have no absesses or strictures or anything out of the ordinary...
yet why does my *** hurt so much??? could it be too many BM's??? I think so. It kinda feels like I have a bunch of broken glass stuck up my ***.
I am so getting sick of not being able to sleep at nite. Usually during the day I'm pretty good.
I have done it all...
no eating after 7pm
gas x, metamucil, percribed meds.
butt pastes and creams too numerous to mention
etc, etc, etc.
I barely eat anything, I don't know where all the crap that comes out of me comes from... :o\
I guess I'm just full of it tongue that's what my husband says.

I worry that I may have to go back to a temp ostomy so that my butt can heal up a bit... ????
and literaly that scares the crap out of me! And I have enough of that coming out of me already.
When is this vishious circle going to stop repeating itself?
When or will I ever be able to live my life normally? smhair

Thoughts, suggestions? & thanks for the support in advance!

PS: currently on iron inf. 1 a wk. and Remicade now every 4 wks.
GI appt scheduled Nov. 24 nxt remicade schd for Nov. 26
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.

Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 11/13/2009 2:22 PM (GMT -7)   
Hi Sofee,

I'm sorry you're going through this right now. I'm afraid I can't be of much help except for the tenderness caused by going so often. When I get too raw on my butt from diarrhea, I apply baking soda to it and it really helps reduce the pain and burning. I've always used Arm & Hammer but I assume that other brands would work just as well. It may sound weird but if it works, I use it, and this works very well for me.

I hope you and your docs can get this under control real soon.
I feel a whole lot more the way I do now than I did a little while ago.

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