Unbelievable Weakness - Searching for Cause

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New Member

Date Joined Nov 2009
Total Posts : 16
   Posted 11/13/2009 6:30 PM (GMT -7)   
Has anyone else experienced incredible, all-over weakness that makes you feel totally listless, whether or not you are sitting? Can active Crohn's by itself be the cause or is there some overriding additional factor? Just had blood work, will wait a while to get results. Really feels overwhelming, so I'm skeptical of any "marginal" issues that cause a bit of fatigue/weakness.  Any theories would be helpful, a few facts below.
Normal B-12 levels last checked (although time before that was in 200 range).
Taking Entecort and Humira - can these have this side reaction?
BUN, sodieum, potassium - OK
Pulse beats higher when standing up - endocrinologist said i may be dehydrated, but the weakness is severe so doubt it is this.
Severe insomnia, sometimes take Ambien 

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/13/2009 7:30 PM (GMT -7)   
Can be humira, have you gotten your ANA tested?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

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Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 11/13/2009 7:45 PM (GMT -7)   
Iron/ferratin levels?

My pulse also beats higher when I get up, I don't think that's too unusual. What heart rate's are we talking about?

Any symptoms of MS, or just weakness all over?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.

Go Saskatchewan Roughriders!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 11/13/2009 7:50 PM (GMT -7)   

Veteran Member

Date Joined Mar 2007
Total Posts : 1653
   Posted 11/13/2009 8:36 PM (GMT -7)   
Does this weakness persist over hours or days, or is it something fleeting that comes and goes?

For what it's worth, during a few of my longer "flares" that lasted several weeks, I've had days where I was so weak I could barely take a shower, or barely even sit upright for very long, yet I wasn't dehydrated, wasn't malnourished, had no diarrhea, and my blood work showed nothing unusual. The best way I could describe it is I felt like I had the flu but without the high fever. In fact I would say that is one of my primary indicators of flaring for me, since I usually don't have the big d even in flares.

So, yes, it's possible that Crohn's itself is causing your weakness. At the same time, it's always wise to look for other, or additional causes, such as you're doing.

New Member

Date Joined Nov 2009
Total Posts : 16
   Posted 11/13/2009 8:55 PM (GMT -7)   
Haven't gotten my ANA test, as far as I know - what might such a test restult suggest as a cause for this weakness? Does Humira side effect show up in ANA levels?

I do have anemia, hemoglobin in the 10-11 range, but it's been that way for a while and the severe weakness is only the past 6 weeks or so. Some days it's not noticeable in the mornings, and usually starts more in later hours, after "exertion" (which includes such things as talking on the phone, so not much exertion...)

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 11/13/2009 11:31 PM (GMT -7)   
Low potassium makes one feel weak like that. I'd get all the checking done. I know I felt that way on Remicade because it was not for me. Be interested to hear what you find out. Hope you feel better soon.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

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