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New Member

Date Joined Nov 2009
Total Posts : 16
   Posted 11/15/2009 3:32 PM (GMT 0)   
hello everyone.

i am so greatful for this website. i have learned more from reading these posts than i have learned from my doctor and other sites. i obviously have a lousy doctor. i do have an appointment with a new doc in december.

i have just been diagnosed this year. he diagnosed me soley on blood tests and symptoms. my colonoscopy and endoscopy showed diverticulosis, gastritis and hiatal hernia, but no signs of crohns. he told me that the crohns must be in my small intestines which would require a pill-cam to see. my insurance denied the pill-cam, so doc put me on 6mp, pentasa, entocort, reglan and prevacid. i had an allergic reaction to the pentasa and reglan, so i am currently taking 6mp, entocort and prevacid.

so now i am questioning if i have been correctly diagnosed. my symptoms are abdominal pain and bloating, nausea, chronic constipation. and just this weekend i've had horrible cramps and blood in my stool. i dont know, but im definatly getting a second opinion.

thanks everyone for your help!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/15/2009 8:49 AM (GMT -7)   
Your welcome! We do have a great forum, I have had this disease 34 years and I am still learning new things. Because of this forum I think it has helped me to reach remission quicker, by my adding Probiotics, and Vitamin D. It does sound as if you do have Crohns, but there are other illnesses that could be like Crohns such as Celiac Disease and Diverticulitis. The meds that you are on sound like they are the right way to go for a flare right now. The 6mp can take up to 3 mos or so to kick in, so do give your meds a chance to start working. The Entocort is a good steroid, but it too takes a little longer than Prednisone to kick in, but give it time. If its not working soon, then talk to your doctor about Prednisone. Hope you get feeling better soon. Usually the first flare is the worst and the hardest to get under control. I would also recommend a low residue diet. Its easy to chew, easy to digest. You can google it and get some diet ideas. Good luck!

Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 11/15/2009 9:01 AM (GMT -7)   
It sounds like you have Crohn's to me as well, but I wouldn't dissuade anyone from getting a second opinion. Good luck!
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.
Learning how to live again.
"He who has a why to live for can bear with almost any how."

Veteran Member

Date Joined Feb 2009
Total Posts : 1879
   Posted 11/15/2009 9:06 AM (GMT -7)   
rianne, I concur with everything you said about the website. Sounds like we have a little bit in common. What blood tests did you have that identified crohn's? I had the prometheus test ASCA that was positive 1:120. When I was diagnosed last January, they said I had colitis related to diverticular disease. I suspected that I had UC but got my primary care doc to order the blood tests. I was a bit surprised when it showed crohn's instead of uc. My problems are mostly in the lower, sigmoid colon and for years my main symptoms were constipation, cramps, severe pain and some bleeding. I am hoping they will change my meds this week when I go in to see the doc. I've had an awful weekend too. I've had to take some loritab for the pain and spasms. It is the only thing that stops the spasms so I can produce a bm. Keep us posted and good luck with your meds. It does take time for them to kick in. The moderators and people here are awesome and have a lot of knowledge, usually more than most docs if you ask me.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel

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