pb4, you're sooooooo right! When we have a good day, we're constantly waiting for the other shoe to drop. I think in my case at least (not being the one in physical pain), if I can get past the feeling that the sword of damocles is not hanging over our heads, I would be so much happier.
I envy my cat so much some days - completely oblivious to any concept of a future, or planning, or fears about the future. If she feels good, she is happy; if she feels bad, she complains or curls up and acts pathetic. None of this, how long will this last crap.
Off to therapy I go next Monday.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life