The Dr said NOPE. I don't want to take a chance of your body going through anymore side effects to your Nervous system. So *crossing Fingers* we hope that meds I take which will keep any flare ups away. Though steroids that I was given in the hospital for 10 days didn't do anything at all. But i'm back on them now. If this doesn't work I will have to have surgery. thats when I was given my 1st Remicade. Worked WONDERS!!!! then it was all down hill from there.
The 2nd treatment of Remicade (sept 1st 2009) totally attacked my nervous system. From the tips pf my toes to the top of my head. By the time I pieced everything together, I had, gone ahead with the 3rd treament of Remicade. The attack of my nervous system equals ***** numbness, tingling feelings, loss of motor function in my hands and fingers. A dropped right ankle, messed up my total knee replacement (March 2009), messed up my rotator cuff and bicep muscle surgeries (June 2009) The pain so bad in my fingers, palms and right foot, that even 30mgs of Oxycodone 2 X's a day doesn't even take away more then 50% of the pain. ****I do not have control over my right ankle. Its like there is no support. As in tendons etc holding it together. my ankle constantly gets twisted.
The more I try to do with my hands and fingers the more they hurt. If I walk more then 5 minutes straight, the pain in my totally replaced knee is like H E double hockey sticks. My right foot is like dead weight. I basically drag it. My knee makes more sounds now then a Marching band does!
I can't sit in a chair, sit in a car, with my knee bent for more then 5 minutes, because that makes the pain in my right knee, the top part of my lower leg, and my toes, go bonkers with more numbness and tingling
So my Neurologist Dr told me that besides the Fribro that he told me about 2 weeks ago, I now have neuropothy(sp). Don't even think about touching the skin on certain areas on my body.
There is a 95% chance that I will never regain any of the motor functions that i've lost. That none of the tingling and numbness will ever go away.
What makes me so
is that for 35 years i've been a florist, a landscaper, a stained glass artist and a jewlery maker. Now I can not do any of that. Takes me forever to type so I basically look at the topics in the forums and see if anyone brings up this about
their treatments of Remicade.
Sally from Milton NH.
Prevcid DR (1) 30mg every morning
Oxycodone (1) 30mg every 4-6 hrs Dicyclomine (2) 20 mg 4X's a day
Vicodone APAP (2-3) 7.5-750 At bed time
Potassium CL ER (2) 20mg 3 times a day
Ascecol EC (4) 40mg 3 X a day, Dicyclomine (2) 20mg 4X's a day
Pomrthazine (1) 12.5 mg 2-3 X's a day
Remicade doesn't like me anymore. Onto Humira
RICE chex's and I have become really really good friends!!!!!!