This whole thing started back in Feb 09 when I went into the ER with three major abscesses that were I&D'd. Since then I've been having issues with more abscesses and then fistulas opening up.
So two days ago, I went under general so they could do an exam with poss fistulotomy and seton placement if they could find somewhere to put one. Boy did they find a place! They inserted three setons into three separate fistulae. I apparently have 7 or 8 holes, but three were actually fistulas with tracts to my intestines.
I'm a little curious about how these are going to heal anything- I know they are going to prevent further abscess and that's great, but healing? I don't think they're the cutting kind because they are just looped and tied and she said nothing was stitched to me. They are red and they look like the twist ties that keep bread fresh. They don't really hurt, they are just uncomfortable and weird feeling- I guess I have to get used to tubes hanging out of my anus! Are these supposed to heal anything, or just hold the holes open?
Does anyone have any feedback? Advice? I'm afraid I'm not going to keep them clean enough.
Also, they found a stricture which I didn't know was there. She said she used her fingers to dilate it (which means it's not far in) but now Im worried about it closing back up again and then I'll be in real trouble. The doctor told my husband that my next step might be colostomy. I knew that was probably my future but it was something to hear the surgeon say it. Then again if I had an ostomy and never had to use my anus again- it would be a welcome reprieve.
I'm glad I'm finally feeling a bit better as far as the abscesses and fistulas are concerned, but it's never ending, there's always something else wrong...and all they ever say is "it's a tricky disease" well, I know that, I live that!
Laurenne, 25 Graduate from University of California, Davis. BA-Anthropology
Dx'd w/ IBS and CD in 2002. Three abscesses that are now fistulas.
On: 6MP, 20mg Prednisone, Zoloft, Cimzia (working so well, I'm on Miralax too!)
Tried: LDN- Did nothing good, Remicade- allergic, Humira- no reaction