I don't know how bad your Crohn's is, but we took my son off of his Imuran (which wasn't working) and used LDN solely, and it is probably the biggest regret of my life. Did not work one bit and once we weened below 6mg of Prednisolone the inflammation and blood came back fast and with a vengeance. He is 30 lbs and now on 60 mg a day of Imuran and it isn't working. Tomorrow we go in for an iron infusion and his first infusion of Remicade.
Sorry, I do not know the reason for the continued effect from LDN.
If you don't mind me asking, did you get all those bone issues through the use of corticosteroids? I have been trying to get an answer as to how long one has to be on steroids for the horrific bone loss to begin. My almost 3 year old son has been on prednisolone now for almost two years and has not grown an inch in that time. I am terrified that not only are his bones not growing, but that he could already have osteoporosis. The sounds of his shoulders popping and cracking is gruesome to hear.
Father to 2 year old son diagnosed with acute Crohn's.
Imuran (60mg's a day), 30mg Prednisolone, SCD diet, Mutaflor, Dr. Ohhira's Probiotics 12 plus, Homemade Goat Milk Kefir, Vit. D3, Vit. K2, Calcium Orotate, Epicor jr., Fucoidan, Hemp Milk, Tried LDN, did not help, Always flares when we dip below 5mg Pred. Just got over C. Diff
Post Edited (memorytheatre) : 11/23/2009 1:30:20 AM (GMT-7)