hey everyone! im new to this forum but im very active on another crohns forum. however i am in a desperate search for info and help for Pyoderma Gangrenosuom. specifically the Peristomal variety in my case. i did have some ulcers on my legs but they seem to have taken care of themselves, my stomal ulcer is as active as EVER though.
i was dx with crohns about 11 years ago, i am now 19. on April 7 of this year i finally got my ileostomy and almost immediatly after i got home, the PG started growing. i kept asking again and again what the "crack" around my stoma was, but it was over a month until it was actually dx. by that time it was a mess complete with a fistula through my stoma and all.
SO anyone else out there with this awfulness?
right now im on Prograf and using some fiber dressings under my appliance, and i am about to try Protopic, the topical version of Prograf (i bet you couldnt figure THAT one out from its name huh? LOL)
im on 25mcg/hr fenty patch and still poppong 2 to 4 percs a day for breakthrough. the pain is hellish :(
oh and btw i DID see that you guys have other PG thread here but theres 3910 of them and i couldnt figure out which on to post on! lol sorry!
allright, well i would really appreciate any help and also just to know that theres other people out there with this stupid peristomal PG.
thanks all :)