Collecting Disability at a young age.

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Regular Member

Date Joined Nov 2007
Total Posts : 138
   Posted 11/19/2009 9:21 PM (GMT -7)   
Hey all,

I know the topic of disability has come up many, many times on this forum, but i was wondering if anyone younger than 25 has actually collected it. I am a 20 year old female with severe Crohn's from mouth down to the anus. I am on immuno suppressants including regular treatments of remicade. I am a college student, but only taking about 10 credits because that's all I can handle. Also, I'm at a community college because i didn't think living away from home would be a good idea. many days I cannot even go to my classes. I do have a little job as a paid tutor only 5 hrs a week and maybe $150-180 per month. Many times I cannot even go to this job because of either extreme nausea, diarrhea, chills, arthritis, insomnia, or fever. It really comes and goes and sometimes i feel okay. I mean do you guys think I have a good case or not because I am so young and I have not really contributed to SS. Although i think i would be able to collect on my parents? Anyway i just really think disability would help me because my insurance is almost like $420 per month plus all other bills and although my parents can pay for it it's getting really expensive and I know it's a strain. I feel like a failure/useless because I basically still have to ask my mom for money because I don't make that much on my own due to my unpredictable health at times. Do you think my doctor could point me in the right direction, we've been looking at lawyers, I just wanted to know if anyone had any input about the disability process for a young person.

Thanks so much,

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/19/2009 11:29 PM (GMT -7)   
That's an option you should definitely explore as I'm sure there are many young adults that qualifiy for it and recieve it. I'm in Canada myself so I'm guessing the process is different (assuming you're in the US), so definitely check into it. Good luck!


Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 11/20/2009 1:01 AM (GMT -7)   
If you are in the US the process seems to vary a great deal from state to state. I guess you'll just have to go through the process and find out unless you can get advice from someone in the state you're in.

Good luck.
I feel a whole lot more the way I do now than I did a little while ago.

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 11/20/2009 12:27 PM (GMT -7)   
Well I am 25 now was 24 when I got disability.
But I live in Iceland so I don't know how it is in the US.

I know some people who have been younger than me go on disability but you have to be over 18.
25 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
CD/UC they dont know witch October 2008
Autoimmune Hepatitis in July 2009

Medication - Asacol, Pariet, Cipralex and Cerazette.
Past medication Remicade
My wonderful dogs :) ~ ~

Regular Member

Date Joined Nov 2007
Total Posts : 138
   Posted 11/20/2009 8:01 PM (GMT -7)   
thanks for all the responses, yes i live in the US, in IL. I know the process will take a long time but i'm going to check my state's SS laws and definitely look into it.

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 11/20/2009 8:24 PM (GMT -7)   
I was 28 when I got disability for multiple issues this topic caught my eye from the pain forum. I do not have crohns
Chronic Lyme Disease
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Adrenal Fatigue

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 11/20/2009 8:42 PM (GMT -7)   
I was 21, am now 36.

Good Luck
Humira 2 times a month.
Lialda 2 X day
Imuran 200mg day
Phenergen PRN
Remeron 30mg day
Pain Meds

Regular Member

Date Joined Nov 2008
Total Posts : 348
   Posted 11/21/2009 4:36 PM (GMT -7)   
I have applied and I am waiting about 6-7 weeks now. I have called a few times for an update. Nothing is moving.
27m - Dx January 2005: UC/Crohn's
Humira, Entocort 9 mg, Asacol 4 x 3, Flagyl 250 mg x 3
Imuran failed

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 11/21/2009 5:18 PM (GMT -7)   
With your limited work history, it is unlikely that you would qualify for Social Security Disability Insurance [SSDI]. However, if you meet the medical criteria, you likely would qualify for Supplemental Security Income [SSI]. Both programs are administered by the Social Security Administration.  The criteria required to qualify are explained here:
Dollar amounts awarded through SSI depend on several factors but are never more than $674 [this it the 2009 rate]. Some states add money to the SSI amount for their citizens that qualify.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/22/2009 2:04 PM (GMT -7)   
In Canada you can appy for federal government disability but you have to have paid enough into it to qualify ( age is not necessarily a factor either ) if you're in your early 20's and you've worked long enough to have paid enough into it then you can get it...then there's also provincial disability which does have a cap on it 800.00 a month max and it goes by your monthly household income (as in if your spouse works, depending on how much he/she makes per month/yr) will depend on how much you get but the max in some provinces in Canada is 800.00/month, but it does not depend on if you've worked or how long you've worked. Then there's also disability (permanant or temporary) through your insurance benefit plan from your in Canada there are at least 3 options for temporary/permanant disability benefits.


Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/22/2009 3:13 PM (GMT -7)   
in some states you have to have 40 quarters of work, so I think it cannot hurt to apply.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

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Regular Member

Date Joined Dec 2007
Total Posts : 63
   Posted 11/22/2009 7:55 PM (GMT -7)   
Re CrazyColitis
Like Ides said: There are TWO types of Disability here in the U.S
SSD you will probably not get. You must have a certain amount of work credits/history...think its 3ys but don't hold me to that.
SSI ....requires ZERO work history.
I was on SSI when I was 18yrs old. I was DX when I was 12yrs old.
I was on it for a few years until I was well enough to work. I worked for appr 8 yrs until I started to flare badly.
I had to quit my job as a USPS City Carrier and then apply for SSD. I was innitialy denied but won on appeal.
You can get on disability at a young age.
Sick is Sick. Does not matter if you put in time or not.
However SSI, you will get less money than SSD.
Good luck to you.
34 yr old Male from NYC, DX with Crohn's in oct of 1987
Resection in 1990
Switching to Remicade, Aug 6th. 2009
Entocort 3mg 3 pills each morning.
Currently on Humira pen shots, 40mg weekly. Cipro 2x a day.
Anemic again, Start Iron infusions August 31.

Regular Member

Date Joined Nov 2007
Total Posts : 138
   Posted 11/23/2009 10:03 PM (GMT -7)   
hey everyone,

thank you so much for all the replies. Ides- thank you for clearing the SSD and SSI for me. I now know i would fall into the SSI category, i was just asking because reading the government websites there was a section about being able to collect on your parents if you were under 22, but i wouldn't qualify for that anyway. Also, i mean i do know SSD is for people who work a long time and i'm not trying to take anything away from that, but being so young and not being able to even hold down a part time job(i've tried on and off since 15), i really could use the assistance.
Also-crazycolitis, what do you mean about college disability services? i am signed up with the health office so in case i need a medical withdrawl i can have one, or extra time or whatever. is that what you mean?
Again, thanks everyone for the advice and i'm definitely going to look into SSI.

Xx Claire xX
Regular Member

Date Joined Mar 2005
Total Posts : 94
   Posted 11/24/2009 11:43 AM (GMT -7)   
hope youve made some progress. i also am 20 years old and just got my letter saying i had been refused disability allowance which was frustrating because i cant work at the moment because of my health and have 3 prescriptions a month to pay for. i dont no a way around the system but havent met many young people with crohns so if you need someone to talk to feel free to give me an email
hope things get better for you
claire h xxx
Claire, 18
Diagnosed with Crohns march 2005
started on Liquid feed for 2 months +12 a day prednisolone,
Aziothioprine 100mg
pentasa 1500mg
calcium and vitamin D
Small bowel resection october 2006
Osteoporosis diagnosed 2006
Possibly relapsing! :(
Life is what you make it!!!

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