My daughter was dx just over a year ago adn seemed to be improving, but in October the severe nausea returned as well as all the other symptoms; exhaustion, weight loss, and abdominal tenderness. She hasn't begun with diarrhea, though. No matter what she forces herself to eat, she still loses approx. 2oz per day. (though a month ago lost 5 in a weekend and hasn't gained it back). Her doc is running some tests after finding a small mass where her large and small intestine meet. Put her on an intestinal antibiotic. All her markers indicate a moderate flare. No obvious blood loss which is good.
Her doc has advised us to start enteral feeding this December at night. He is trying veyr hard not to put her back on prednisone, but has discussed trying methotrexate in place of 6mp.
Anyone else out there have tube feeding (through the nose), and want to share your experience?
DX in 2000, (Mild to Moderate) take Pentasa, Lexapro, Multivitamin AVOID WHEAT AND DAIRY, as well as fried foods.
Daughter age 15 dx with Crohn's on 12/22/08 (Moderate to Severe): Prednisone, Nexium, Pentasa, 6mp, yogurt , teen vitamin