On humira and Entocort & still flaring!

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Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 11/27/2009 9:08 PM (GMT -7)   
Are any of you on Humira and Entocort and still have occasional flares? Do you think its normal that I am having severe flares while on such strong drugs? Its been 6 months since I began Humira and 2-3 months for the entocort. I would think these should be "preventing" flares but maybe its normal to have the occasional pains? I'm seeing my dr within the next few weeks but want to get people's opinion on this. I might have to search the surgical route if these last resort med's aren't doing it...last surgery I had was in 97' so I think I've made it a long while. Maybe I'm due for another snip.
27 yo Female, Crohn's, stricturing type- terminal illeum.
Diagnosed at 6...symptoms at age 2
Bal-resection 1998
history of prednisone, antibiotics, Asacol, Prilosec, Pentasa, 6mp, Imuran, Remicade, LDN, Entocort, Humira...

Regular Member

Date Joined Oct 2005
Total Posts : 429
   Posted 11/27/2009 9:49 PM (GMT -7)   
I was just on Humira when I had this last bad, worse flare I've ever had. I had been on Remicade and it seemed to work much better for me. I wasn't on entocort at the time. Maybe someone will come a long and have done that. For me, Humira just did not seem to be working as well. I hope you get to feeling better *hugs*

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/28/2009 8:36 AM (GMT -7)   
Maybe you need to switch from Entocort to Pred to get your flare back under control. And not all meds work for everyone, so maybe Dana31 is right and you need to change up your meds. I would pursue all medical options first before deciding on another surgery. What is removed cannot be replaced.

Good luck,
Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Nov 2008
Total Posts : 63
   Posted 11/29/2009 8:26 PM (GMT -7)   
I'm on Humira and Entocort and my crohn's is far from under control. I find that when my doctor tries to taper me off entocort my crohn's becomes 1000 times worse, so its obviously doing something for me. Its just frusterating when meds don't do what you want them to.
-Heather, 24 yrs. old

- Crohns disease since 1995, officially diagnosed in 2003.

- Bowel resection in Dec. 07, Crohns reoccurred July 08.

- Medications - Entocort 9mg, Humira, Flagyl 250mg, Lexapro 20mg, Wellbutrin SR 150mg

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