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New Member

Date Joined Nov 2009
Total Posts : 1
   Posted 11/28/2009 12:08 AM (GMT -7)   
I first developed Crohn's disease at 27 years of age.  I was miserable for about one year and was on an off prednisone and continuously on azulfidine.  It was getting no better and finally I perforated and required 8 hour surgery to remove about 2 feet above an below the iliocecal valve.  According to the surgeon it had been perforated for a few days and he said the material taken out looked like rejected tissue when transplanted organs are rejected.  After the surgery I had a Dr. who had treated Crohn's for many years.  He took me off all milk (which I loved) and gave up all medicines.  I have gotten to know immodium AD because of the removal of the iliocecal valve, which works well. 
I just turned 65 and have been in complete remission for over 35 years.  I am certainly not suggesting that my case is typical, or that anyone should not take prescribed medicines, but I am confident that I had an allergy to milk, and once I got off of milk, even Lactaid, I had no more problems.  No one in my family, either before or after has had Crohn's besides me, so it is hard to see a genetic effect. Incidentally, there is no doubt that I had Crohn's since it was physically found when I was operated on for appendicitis, which I did not have.
I only posted to let you know, that while it is said that you are never cured of Crohn's, I am living proof that is not true. I know what you are going through and I pray for your health.  But keep your optimism, I never lost mine.  I am convinced that attitude helped me immensely. 

Regular Member

Date Joined Dec 2007
Total Posts : 298
   Posted 11/28/2009 12:34 AM (GMT -7)   
Thank you for sharing your story.
July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying... Enteral Nutrition, VSL#3, Primadophilus Reuteri, Folic Acid, Vitamin E

Regular Member

Date Joined Feb 2004
Total Posts : 53
   Posted 11/28/2009 4:58 AM (GMT -7)   
Thanks for sharing :)
Female, mid-20's, lives in Australia
Symptoms since 99', Dx 2003, Right Hemicolectomy 2004, Trying to find the magic combination to manage this silly disease :)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 11/28/2009 8:10 AM (GMT -7)   
Thanks for sharing your story. But I disagree with you, you are not cured. but are just in remission. I have had this dd for over 34 years, and I too am in remission. My longest remission so far has been 20 years, but I am not naive enough to believe I am cured. And I have not drank milk for years as many Crohnies are lactose intolerant. I don't want anyone who is newly diagnosed to think that all they have to do is quit drinking milk and they are cured, because at this time it is known that there is NO cure for Crohns.
By the way, I am the only one in my family who has Crohns too.  JMHO

Good luck to you!


Gail*Nanners* Co-Moderator for Crohns Disease and Anxiety/Panic Forum
Crohn's Disease for over 33 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium  w/Vit D, and Xanax as needed. Resections in 2002 and 2005. Also diagnosed with Fibromyalgia, Osteoarthritis, and Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
It's scary when you start making the same noises As your coffee maker.
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
*~* *~*

Post Edited (Nanners) : 11/28/2009 8:13:51 AM (GMT-7)

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