It's been a while!
I had my resection surgery a year ago now: and had about
1 foot of bowel removed (mostly small intestine, but some large). Results were that I had some cellular changes in the intestine (could have led to cancer down the track) and I had so much inflammation/scar tissue that the intestines had formed a ball. I was told this should give me approximately 2-5 years flare free.
It was not to be so: barely six months after the surgery I began to flare again! Currently, my inflammation levels are 36 when they should be somewhere in the vicinity of 0-6. And the surgery has created a new set of problems for me: I have (a year on) a fairly constant pins and needles sensation at the scar site (I had the full cut down the centre of the stomach) as well as a tightness sensation/tenderness present. The reflux, D, and nausea isn't helping either. I am still waiting to get into the specialist, as I am going public this time around (I am in Australia)....my GP put me on pentasa for the time being, but it isn't really helping.
And at age 21, I am beginning to have joint issues, particularly in my knees. I saw my mother live with early onset (at age 33) arthritis and I don't want that life for myself. In short, I am terrified.
Stories, hope is what I am looking for. Please, please can someone tell me it is not all in my head!!!
Who will tell whether one happy moment of love or the joy of breathing or walking on a bright morning and smelling the fresh air, is not worth all the suffering and effort which life implies. ~Erich Fromm
discussing Crohn's Disease, infertility, fostering, fundamentalists, my family, and my babies with fur :)!