Life is mostly normal right now. Like everyone else, I have to be up earlier because of how busy my system is when I first wake. Things are much better after morning has passed.
I generally don't eat much, I have to take a nap almost every day, and I sleep more at night than I used to.
I'm able to cook, clean, study, and play music. During school I have some trouble because of all of the work due, but I'm generally okay about
getting it done in the end. I work better in the evening so this past semester I had been up until 4 a.m., going to class from 9-1, and then taking a nap until about
5 or 6 in the evening (repeat process ad nauseam).
It's break now so I'm able to get everyday things done as long as I have the bathroom
open. When I know someone is taking a shower I do things that require sitting like reading or computer work until they're finished because I'll have that "have to go NOW" alert
if I'm up and about
in the morning.
When I'm kind of flaring, I have to take immodium every day, painkillers as needed, and at least 20 mg of prednisone. I don't eat anything really except for ensure and chicken with olive oil if I can manage solids.
And when I'm really flaring, I sleep approximately 20 hours a day, go to the bathroom 10+ times per hour while I'm awake, but it's generally just blood and sometimes debris mixed in. I can't get water down, but ensure seems to work fine. I have to go to the hospital for IV steroids and liquids, and the doctor will usually prescribe percocet or something along those lines. I have to be really careful with diet and exercise for a couple of months after that, and then I return to semi normal.
It's just kind of a cycle it seems. I was pretty strict on the SCD for a while, but I'm slipping because I can't afford a lot of the materials. Olive oil and chicken are about
the extent of legal foods I'm able to obtain at the moment. I've also been off of humira for several months, but things seem to be going well so we'll see.
Diagnosed with Crohn's in May of 2008.
Currently taking: Prednisone, pentasa, omeprazole, and humira. Using probiotics and a multivitamin.bonniegriffith.blogspot.com/
Learning how to live again.
"He who has a why to live for can bear with almost any how."