Posted 12/15/2009 2:25 PM (GMT -7)
I've been lurking about the forum for the past month or so ... as I've been in a Crohns flair since mid-September. I was diagnoised seven years ago with Crohns ... and have had it under control - for the most part - for the past couple of years. Starting in August I was so fatiqued I could barely keep my eyes open ... then the canker sores started ... then the diahhrrea. I had an appointment with my GI yesterday ... apparently I should have called him sooner and told him of my flair ... he wasn't pleased with me. Opps! I thought I could get it under control on my own. Anyways ... I'm off for a CAT scan tomorrow and an X-ray for ankalosing spondalitis (?). Then we reconsider changing my meds the following week.
I was especially glad to see a posting about
Humira. My doctor recommended adding Remicade to my regime of meds ... but the nurse told me that as of 1/1/10, Remicade won't be covered by MVP Healthcare. So, I decided if I HAVE to do this, I'll choose the Humira. Then I see the post about
pain and Humira.
Sometimes, I faint when I take a poop! How am I going to handle the sting of Humira.
After all this rambling ... I do have a question; When you take Remicade or Humira or Cimzia ... is that in ADDITION to your other Crohns meds? Between the prescribed drugs and the vitamins, I take 17 pills a day!
Oh! Also, the doctor said something about the Crohns maybe changing to Ulcerative Colitis. I didn't quite understand that. Does that happen?
On another note; co-workers tell me how great I look! Idiots! Do they NOT see me running like a line-backer for the bathroom every 30 minutes?
Thanks for letting me re-introduce myself and ramble!
six Asacol ... two mercaptopurine ... and a fist full of vitamins