Questions about Remicade

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Southern Lady
Regular Member

Date Joined Dec 2009
Total Posts : 32
   Posted 12/16/2009 8:18 AM (GMT -7)   
Glad to have found this site. Before now I think I have been living with this disease in denial. Diagnosed in '96 and had a resection done in '01. Since then I have dealt with all the embarrassing and debilitating side effects with a tight grin. These past 2 months I can deny no longer. My GI prescribed pentasa and scheduled upper and lower scopes. When I went to fill the script, I could not afford to get it. I am on disability and it through me into my yearly coverage gap. Next he called in steroids, I don't take steroids, they make me mean and even more of and emotional wreck. I have not gotten them filled. Well he called yesterday and said he wanted me to start on Remicade. Also got on to me for not taking the steroids. Had the attitude of "Get over it."

Now for the real point of all this rambling! Does anyone have experience with Remicade and Medicare? What are Remicade's side effects? He said I would take it once every other month, does this sound right?

Regular Member

Date Joined Aug 2009
Total Posts : 377
   Posted 12/16/2009 8:38 AM (GMT -7)   
Hi Southern Lady,

I don't have experience with Medicare, but I am on Remicade. The side effects are rare but very serious, which is why I wasn't too thrilled about getting on it, however so far it has helped me tremendously. I do feel like it is starting to wear off, and my next infusion is next week. You can google the side effects, but here is one site that I found pretty interesting, because it has patient reviews on it and their experiences:

You start off with a loading dose- so I think the pattern is you get an infusion, the next infusion is in 2 weeks, then at 4 (or 6 weeks, I can't remember which), and then at 8 weeks. After you hit the 8 week mark, you are supposed to stay on a schedule of getting an infusion every 8 weeks for an indefinite amount of time. However, from what I've read and what I'm noticing, it seems like most people's symptoms start coming back before the full 8 weeks is through, and you then either have to up your dosage or decrease the amount of time between infusions.

Hope that helps, and I hope the Remicade works well for you.

Regular Member

Date Joined May 2009
Total Posts : 173
   Posted 12/16/2009 11:17 AM (GMT -7)   
October girl is correct.

I just finished the induction phase of Remicade, which is three infusions given at weeks 0, 4, and 6. For Crohn's your dosage is generally started at 5mg/kg.

After your third dose at week 6, you will start the maintenance phase and begin infusions once every 8 weeks.

I have not noticed a single side effect. My symptoms began improving within 48 hours of the first dose, but I am not asymptomatic as of yet, but much much much better than before.

Hope this helps and good luck!
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal (750mg): 3 pills 3xdaily
Cortifoam - 1 nightly
6MP - currently at 100mg and waiting for response......

Regular Member

Date Joined Oct 2005
Total Posts : 429
   Posted 12/17/2009 8:32 AM (GMT -7)   
Hi Southern Lady, if you haven't done this already I would plug all these new drugs in on the Medicare Part D site and see if maybe changing your drug plan for 2010 would be beneficial. I'm so sorry you are having to deal with this. There are also patient assistance programs out there that may help you out. If you want to email me directly and talk about this option it's I don't have health ins at all so I know a lot of ways to get stuff for free. Good luck to you.


35 year old Female

Entocort EC 9mg per day and Remicade

Tried Remicade 2 yrs ago for about a year and a half and loved it, got off it due to costs, tried Humira and it just didn't work for me so now back on Remicade.

~Trying to avoid surgery as long as possible~

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, November 18, 2017 12:43 PM (GMT -7)
There are a total of 2,895,117 posts in 317,767 threads.
View Active Threads

Who's Online
This forum has 157369 registered members. Please welcome our newest member, fsefsejkf1.
300 Guest(s), 13 Registered Member(s) are currently online.  Details
jeff7251954, Froggy88, Lapis_29, BabsBunny, PeppermintTea, Dimitri71, Jerry L., Pirouette, Hoagie, Pratoman, rockyfords, gfields, NeedUChelp

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.