I am new to the forum in the past month. thanks to all for the great support. I have had CD for about 13yrs and was on maintence meds with only anemia as my main problem. then in oct i had a blockage. I had been moved to cimzia about a year ago as the dr. saw dramatic inflamtion when he did a colonoscopy. Spent 6 days in hospital. started back home with prednisone and Dr. wanted to try remicade. have had 2 treatments, but have had two bad flareups in the past 3 weeks-nausa, throw-up, pain, feeling run down and just plain sick. interestly, i do not get the dreaded "d" much, just everything else. the flareups seem to be getting closer and closer together.
Dr. sent me for another CT scan this past monday. it showed that the two spots that are very narrowed have not gotten any better and he feels it will not. In fact they got worse while on Cimzia and the remicade is not helping, he says we need to remove it via surgery. i am on basically a liquid diet and some soft foods hoping to not have another blockage during the holidays. Set to see him and the surgeon Jan 6-both are out until Jan 4th. I am set if need emergency care- dr and surgeon taken notes to team in their groups and we are set as to which ER to go to.
I do have 3 complications for my surgery. 1) my intestinal track is backwards from most people-a condition from birth. all this means is no laproscoptic surgery. and 2) i had adominial hernia surgery 6 months ago where they place a mesh in th tear and they have to undo that to do the resection. so the surgery and recovery will take longer. 3) I take 5 different high blood perasure meds. this makes balancing all the meds difficult due to drug interactions. In fact at my hernia outpatient surgery, it took me 4 hours to wake up in post op. they were ready to admit me to the hospital.... ugh.
I am ready to get this over. The past two times i had a flareup I was getting ready for a work trip and had to cancel. further more, I was on a work trip when i had a flareup right after the hospital and had to sit in the hotel room for two days-the bad thing it was my meeting i called with my team from all over the country.
I will update you as we go along