i was on it for 6 years. i started when they thought you could only get it once and before they were giving double doses or using it as maintenance med, administering it every 2 weeks. so anyhoo, i felt better after all my infusions, but say 6-9 months later i'd start to become symptomatic again. i was only able to get off the prednisone, non of my other meds (6-mp, asacol, cipro, flagyl, etc). then they discovered you could get it bi-monthly and that helped a lot, at least with symptoms. i always noticed i was stronger soon after an infusion, making quick gains in the gym with my weights. but alas, the medicine is supposed to prevent and heal fistulas but i developed one, a hole from my colon to my bladder, after being on it for 6 years. so basically, after 6 years of using it, imho, it only treated symptoms and not the underlying cause cos i actually got worse and required surgery.
i soon turned to dietary and alternative methods and i have had so much greater success than traditional western methods. i am now symptom free and do not take any meds (2 years now). the makers diet and scd worked for me. i cannot recommend these diets enough and i am disillusioned about the biologics (remicade, humira, cimzia, etc) from my experience.
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07