if REmicade didn't work with you, what did?

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New Member

Date Joined Dec 2009
Total Posts : 2
   Posted 12/28/2009 10:22 PM (GMT -7)   
Well...heck...went in for Remicade after a year of being on it at 8 week and 6 week intervals. Had a light headed feeling that my nurse attributed to me coming in hyper after drinking coffee. 6 weeks later, reaction to the treatment in the form of chest tightness. I was given something in my IV and I was able to finish treatment. Today, went in, given a steroid in the IV started the IV slowly, felt myself get light headed, my arms went tingle, and i threw up and they stopped treatment. Doc told me to call him tomorrow to figure out what new med to put me on.

Anyone had a similar thing happen and found a different treatment? I had originally done 6mp for years until it started making my physically ill. My body loves to randomly reject medicines it was fine with before.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/29/2009 9:17 AM (GMT -7)   
I would assume that Humira or Cimzia might be your next option. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2003
Total Posts : 734
   Posted 12/29/2009 12:03 PM (GMT -7)   
I may not be much help - looks likes we are opposites.  Remicaide didn't work for me, but 6MP did.  How does your body act if you back on a med?  Wondering if you could you try 6MP again.....

"We can't beat this disease, YET, but we can't let it beat us!"

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 12/29/2009 10:25 PM (GMT -7)   
i was on it for 6 years. i started when they thought you could only get it once and before they were giving double doses or using it as maintenance med, administering it every 2 weeks. so anyhoo, i felt better after all my infusions, but say 6-9 months later i'd start to become symptomatic again. i was only able to get off the prednisone, non of my other meds (6-mp, asacol, cipro, flagyl, etc). then they discovered you could get it bi-monthly and that helped a lot, at least with symptoms. i always noticed i was stronger soon after an infusion, making quick gains in the gym with my weights. but alas, the medicine is supposed to prevent and heal fistulas but i developed one, a hole from my colon to my bladder, after being on it for 6 years. so basically, after 6 years of using it, imho, it only treated symptoms and not the underlying cause cos i actually got worse and required surgery.

i soon turned to dietary and alternative methods and i have had so much greater success than traditional western methods. i am now symptom free and do not take any meds (2 years now). the makers diet and scd worked for me. i cannot recommend these diets enough and i am disillusioned about the biologics (remicade, humira, cimzia, etc) from my experience.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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