Restless Leg Syndrome

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Regular Member

Date Joined Feb 2003
Total Posts : 102
   Posted 12/29/2009 5:21 AM (GMT -7)   
Has anyone been dx'd with Restless Leg Syndrome? My leg will not sit still at night and it is very tiring.
God Bless

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 12/29/2009 2:49 PM (GMT -7)   
Hi Byron,

You might like to pop over to the fibromyalgia forum and talk to the people there. I'm pretty sure some of them have RLS.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 12/29/2009 2:55 PM (GMT -7)   
I have, but its not just my legs i get it in my arms too - it is so infuriating and frustrating! My doctor said it could be caused by a deficiency such as magnesium affecting the nerves, I'm guessing he's right as I do find magnesium supplements help, if I don't take them for a few days it comes back BUT magnesium can cause diarrhoea so its a double-edged sword. Hot baths seem to help ease it for a little bit but with my low blood pressure its not the best idea in the world lol!!

Veteran Member

Date Joined Feb 2009
Total Posts : 1883
   Posted 12/29/2009 3:38 PM (GMT -7)   
Yes, I have experienced RLS as a side effect to some antidepressants that I have taken. I also get restless legs when I have to take benadryl or prednisone. They do have meds for it. It can drive you nuts too and keep you from sleeping. Check with your doc.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel

Regular Member

Date Joined Sep 2005
Total Posts : 89
   Posted 12/29/2009 6:13 PM (GMT -7)   
I've had a little bit of restless legs.  My dr. suggested tonic water--the gin's optional.

Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 12/29/2009 9:11 PM (GMT -7)   
RLS has also been linked to anemia. My legs get terrible when I get too anemic. Have your doc check your iron levels... A series of iron infusions and the legs were good as new. BTW - this happened twice - leg issues then iron infusions and it gets better. Two different times.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Started Cimzia first dose 2/10/09. Dx Osteoporosis 10/08 started Forteo 1/27/09

Veteran Member

Date Joined Mar 2006
Total Posts : 1034
   Posted 12/29/2009 10:05 PM (GMT -7)   
this was a problem for me for a while until i found out i was anemic. iron pills and a b-12 sublingual supplement helped me. acupuncture only gave me a reprieve of a few days. i only got it at night though.
Crazy Harry

Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

Veteran Member

Date Joined Jan 2003
Total Posts : 6143
   Posted 12/30/2009 2:38 AM (GMT -7)   
yep. my dad had it very bad. my brother some what too.. i take a combo of levidopa-carbidoba. seems to work ell. i have been taking it for a few years now after it got so bad i was awake all the time. and car trips are hell.. have to shift every few minutes.

Regular Member

Date Joined Jan 2010
Total Posts : 69
   Posted 1/6/2010 6:59 AM (GMT -7)   
I had some Restless leg issues too. If I remember correctly, my hematologist thought it was related to an iron deficiency anemia issue.

Regular Member

Date Joined Jul 2009
Total Posts : 417
   Posted 1/6/2010 10:32 AM (GMT -7)   
i have some, but never dx. both my parents have it pretty bad and they take requip for it.

last night i was going everywhere, legs were jumping and my arms too, drove me nuts and couldnt fall asleep for a long time.
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008

Medication: tapering off Prednisone (5mg), Pentasa 6x daily, Imuran 100 mg, hydrocortisone enema nightly, multivitamin. Probiotics through yogurt.

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 1/6/2010 2:57 PM (GMT -7)   
I've never been diagnosed, but I am severely anemic and the only time I did have problems with it was when I was put on Prevacid. It was so bad that I had to stop, it was driving me crazy.

Veteran Member

Date Joined Feb 2009
Total Posts : 1883
   Posted 1/7/2010 9:16 AM (GMT -7)   
I have restless legs when I take certain antidepressants. I am not anemic by any means.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel

Regular Member

Date Joined Jan 2010
Total Posts : 222
   Posted 1/7/2010 10:49 PM (GMT -7)   
I get it quite abit as well, and I do a lot of night shifts at work and it can be very distressing when you are trying to relax and just cant sit still for 5 minutes !! I put it down to working nights but it seems like a lot of CD sufferers experience it.
I am also anaemic and have problems with my thyroid so dont know if that has anything to do with it.
Michelle Ashworth 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)

New Member

Date Joined Aug 2006
Total Posts : 8
   Posted 1/11/2010 11:51 AM (GMT -7)   

massaging before bed works for me.

Regular Member

Date Joined Nov 2008
Total Posts : 392
   Posted 1/11/2010 1:39 PM (GMT -7)   
Quinine to order at iherb works for me. Also leg cramps improves. /Bee

Regular Member

Date Joined Feb 2003
Total Posts : 102
   Posted 1/12/2010 5:11 PM (GMT -7)   
Thanks for the replies. I will check with my doc and see what she says. I wanted to make sure I wasnt just making this stuff up.
God Bless

Dennis Young
New Member

Date Joined Jan 2010
Total Posts : 1
   Posted 1/17/2010 1:12 PM (GMT -7)   
I have personally had great success with the antioxidant pycnogenol, which is getting a great deal of press lately. I suffered for 10 years before this product. OPC-3 is the only isotonic capable pycnogenol supplement which is key becasue it is absorbed right away. I have done so well with it that I have become a distributor of the product. It is effective with over 60 diseases in addition to RLS including heart, asthma, allergies etc.. It has also helped me with blood pressure, cholesterol and arthritis pain. Give it a try.

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Post Edited By Moderator (Nanners) : 2/15/2010 8:54:25 AM (GMT-7)

Veteran Member

Date Joined Oct 2005
Total Posts : 540
   Posted 1/18/2010 2:20 AM (GMT -7)   
I find rubbing on some Polar Lotion [Icy Blue] and then adding a heated grain bag helps me the most. The moist heat is awesome!
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
Daughter Jerica 18, Dx: Crohn's, amitriptyline 50mg, Forvia, AZA 150mgs
 Husband with treatment resistant depression:   Effexor-450mgs
Jerimiah 29:11                      

Regular Member

Date Joined Feb 2003
Total Posts : 102
   Posted 2/3/2010 5:56 PM (GMT -7)   
Well, I started a multi vitamin and the RLS has become much much better. It took about 10 days but it finally stopped. Thanks for all the tips!
God Bless

New Member

Date Joined Feb 2010
Total Posts : 5
   Posted 2/15/2010 8:46 AM (GMT -7)   
i had a nerve deduction test ran on my legs and wrist for carpal tunnel and was diagnosed with restless leg and had carpel tunel surgery.... i was on Requipped which worked great but then my insurance decided not to pay help pay for it .. so now i am on meripex.......i might try the natural ways i have been reading about here....shoudl i take my prescription along with the magnesium? This forum is so helpful...altho no one seems to respond to my posts.. i do enjoy reading others.. Thanks.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/15/2010 8:57 AM (GMT -7)   
Hi Annie,

And welcome to Healingwell. I am sorry your posts have not been responded too. On this current posting it is attached to an older post and some folks don't go back and read them if they think they already responded to it. As for taking the magnesium with your meds, it might be a good idea to run it by your doctor or pharmacist. I do know for me magnesium can cause diarrhea or looser stools. Hope it works well for your RLS.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Feb 2003
Total Posts : 499
   Posted 2/15/2010 11:59 AM (GMT -7)   
Since starting cymbalta , I have rls everynight , very frustrating....try to help one thing and have another thing happen....

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